Frank About Health

Thursday, January 11, 2024
Facebook Live Video from 2024/01/11 - Stage of Epilepsy: Advocacy

Facebook Live Video from 2024/01/11 - Stage of Epilepsy: Advocacy


2024/01/11 - Stage of Epilepsy: Advocacy

[NEW EPISODE] Stage of Epilepsy: Advocacy


The audience will see how an epilepsy patient went from feeling like a victim to becoming a fighter, advocate and creating a platform to reach people who were dealing with hormonal and genetically based epilepsy.

This episode of Frank About Health will focus on the Stage of Advocacy which is the point where most people living with epilepsy learn that it is a condition to live with the rest of their lives and must advocate for recognition that it is the equivalent of a lifestyle with some restrictions.  While this can be daunting there are those who see the value in having epilepsy and make opportunities out of it. Today's guest Sam Diann is one such person and you will learn about her podcast and how she has been able to help others improve confidence, self-awareness, and provide the skills for those to self-introspect and reflect.

Show Notes

Segment 1

Segment 2

Segment 3

Segment 4


00:00:47.990 --> 00:01:04.799 Frank R. Harrison: hey, everybody, and welcome to a new episode of Frank about health, a stage of epilepsy moment with Jeff Dimitrack and our special guest, Sam Diane. What I'd like to first say, besides, my disclaimer is that I am very looking very much looking forward to this particular show as

00:01:04.800 --> 00:01:21.619 Frank R. Harrison: we are looking at a fellow epilepsy podcaster. Those of you obviously have been watching Frank about health over the last 2 years have known me to be an advocate for epilepsy. And then, of course, last year, when I brought Jeff in, we decided to create a Mini series within the Frank about health network.

00:01:21.620 --> 00:01:30.329 Frank R. Harrison: But now to have a Podcaster who talks about epilepsy just like what my passion has been all along. I'm looking at

00:01:30.330 --> 00:01:59.750 Frank R. Harrison: what I would consider a colleague, and I'm looking forward to hear, not just her epilepsy story, but also to watch what conversation that Jeff and her create, especially when figuring out how advocacy is actually a stage in living life with epilepsy, and how so well there are the patients that have the auras and the treatments, and the medicines, and the alternative treatments and exposure to narcissism and all of the things that we've touched upon the past year. But

00:01:59.750 --> 00:02:11.769 Frank R. Harrison: now we're going to see it all wrapped up in a nice deep package and advocacy is a platform that most people who live life with epilepsy choose, because the goal is always to remove the stigma.

00:02:11.910 --> 00:02:14.300 Frank R. Harrison: So now for the disclaimer.

00:02:14.930 --> 00:02:39.280 Frank R. Harrison: Any of the information that you learned tonight is meant for conversation purposes only, not to dissuade you from your ongoing treatment methodology with your Pcp primary care physician, or your neurologist, or your epileptologist, or any other mental health professional, you might be having discussions with right now, if anything you hear tonight is food for thought that makes you want to consult with those people

00:02:39.280 --> 00:02:51.430 Frank R. Harrison: to see if there are other alternatives for treatment that could benefit you. By all means. I hope we've done you some justice there, but they're not the views of talk radio, Nyc. Or of Frank about health. Rather. Again

00:02:51.430 --> 00:02:58.880 Frank R. Harrison: food for thought within the epilepsy, epilepsy community that the 3 of us represent. But at the same time the overall health care community.

00:02:58.930 --> 00:03:05.319 Frank R. Harrison: So that, all being, said Jeff. Always welcome back, and Sam, welcome to Frank about health.

00:03:05.480 --> 00:03:15.310 Sam Diann: Thank you. Thank you. I'm so happy to be here with you guys. That was quite an intro. I love it. I might have to take some pointers from you.

00:03:15.420 --> 00:03:28.949 Frank R. Harrison: Trust me every time I do it. It's like I'm rehearsing for my next one, the biggest in the biggest issue with the disclaimer. Trust me, that became a necessity after having some

00:03:29.360 --> 00:03:38.670 Frank R. Harrison: full stops and starts there for a while, but at least it now serves everyone better, including the guests, because I would never want to put you, or

00:03:38.680 --> 00:03:45.190 Frank R. Harrison: or even you, Jeff, at any risk, for whatever you might be doing, especially in advocating epilepsy outside of the show.

00:03:45.330 --> 00:03:52.569 Jeff Demitrack: Yeah. And I think it's so important that you have a disclaimer on all your social media accounts. It's really important.

00:03:52.870 --> 00:04:11.099 Sam Diann: Yes, we definitely need to do that. We we do know there are platforms that can be very misleading. So, for example, without mentioning one particular one. I have chose to become disassociated from it, even though I know that talk radio does stream to it, and I'm leaving. I'm leaving it nameless.

00:04:11.100 --> 00:04:32.069 Frank R. Harrison: But they have become a platform that spreads a lot of stuff that just isn't fact checked. And I don't want to create, especially for this a a condition, let's say, like epilepsy, where everyone just uses the what they observe when they don't live life with it as a a label or some kind of misnomer rather than understanding what it really is about.

00:04:32.090 --> 00:04:59.539 Frank R. Harrison: So I think what's gonna make this episode special is that not only will Jeff and I continue to talk about how the various stages are important for those living life with epilepsy to be mindful of, but you yourself also is living with it, but is able to educate people out there, even if they don't live with it. How to be able to best represent themselves with whatever their limitation might be socially considered. Limitation. Let's just say yes, yes.

00:04:59.540 --> 00:05:08.879 Sam Diann: yes, and that's a really big thing about advocacy is just just starting the conversation. I think just starting a conversation, even if it's

00:05:09.230 --> 00:05:25.230 Sam Diann: I always say this, even if it's just like 2 people that you know in everyday life, you know, friends, family people, you interact with just having a simple conversation that's advocacy. You don't need necessarily a whole platform like us

00:05:25.250 --> 00:05:29.139 Sam Diann: to advocate for something that people are living with.

00:05:30.420 --> 00:05:56.749 Frank R. Harrison: Exactly, and and I guess you, Jeff, can also chime in wherever you feel. But I guess we have all 3 struggled with the misunderstandings that come with living life with it. I mean having a seizure in front of somebody, whether it's a colleague, whether it's a family member, something like that, and they already have you labeled for anything from just being crazy to being a drug addict to being witchcraft possess whatever it might be.

00:05:56.750 --> 00:06:08.520 Frank R. Harrison: But the constant discomfort of feeling like being yourself is not enough, because you have to be. Live through certain expectations that other people kind of impose upon you by talking about it.

00:06:08.560 --> 00:06:14.639 Frank R. Harrison: You're you're creating the stage. You're not letting them create the stage for you. It becomes a might kind of

00:06:15.080 --> 00:06:42.860 Jeff Demitrack: yeah, and that. And now they have something call a seizure action plan. And you know, they've been advocating for this a lot with as long as you have the beginnings of a plan, you know, even if it's just a vague plan, it's it's important that you think about your your medical plan, your safety, your your and just advocacy moving forward.

00:06:43.850 --> 00:06:48.880 Frank R. Harrison: Right? Right? I think you use the word warrior, didn't you? In a previous show that we did together?

00:06:49.270 --> 00:06:50.839 Jeff Demitrack: Yeah. Yeah.

00:06:51.080 --> 00:07:04.289 Jeff Demitrack: Well, I that's just the term that the epilepsy community uses all the time seizure warriors, and not everybody likes to call themselves a warrior because it's associated with, you know. Soldiers.

00:07:05.100 --> 00:07:27.219 Frank R. Harrison: Well, true, true. But you're right. I mean a, a, a warrior, a fighter, an advocate, a someone who's really trying to make a stand and and point out the difference that most people who don't live with epilepsy just don't see, you know. I think that's kind of the the unfortunate circumstance that, having an inorganic illness, like the way cancer has tumors. For example.

00:07:27.220 --> 00:07:42.590 Frank R. Harrison: you know, we're just, we're we're just dealing with brains that have hyper electric charges. So as a result. We're always having to explain ourselves. So why not better than to explain what we're living with. you know. So I'm just very excited that you're here on frank about health to just

00:07:42.620 --> 00:08:00.140 Frank R. Harrison: expose the truth of your podcast and of of whatever you've written in the past, that we're gonna you'd like to share with the audience. But I think, if anything, just already thinking, what is your story based on? Is it genetic, based epilepsy, or is it trauma based or comorbid epilepsy.

00:08:00.660 --> 00:08:06.560 Sam Diann: I don't know why I have epilepsy. My seizures came from

00:08:06.770 --> 00:08:18.209 Sam Diann: just out of the blue. We have theories. you know, my mom and I. We have theories as wh. As to why I have epilepsy, it's not. It doesn't run in my family. I'm the only one in my family with

00:08:18.420 --> 00:08:26.330 Sam Diann: epilepsy. I was diagnosed with epilepsy at 11 years old, after I had Petite Mall

00:08:26.340 --> 00:08:35.689 Sam Diann: or yeah a pet team Mall that it was considered a pity Mall back. Then, when I was 11 in my history class and

00:08:35.809 --> 00:08:44.670 Sam Diann: I didn't have any tests done. I didn't have Eeg Mris nothing just straight off the bat. After my first seizure I was diagnosed with epilepsy.

00:08:45.590 --> 00:08:49.599 Frank R. Harrison: and then I'm sorry. Go ahead.

00:08:49.920 --> 00:08:51.300 Sam Diann: And then

00:08:51.660 --> 00:08:55.080 Sam Diann: from there my seizures started changing.

00:08:55.190 --> 00:09:07.959 Sam Diann: They became Grand Mall or tonic clonic seizures. And ever since it's kind of been like trying to figure out, it's it's a puzzle trying to figure out what

00:09:07.980 --> 00:09:21.489 Sam Diann: is causing my epilepsy. What are my triggers? And you know, at this point in my life I kinda have a grasp on what my triggers are, but I'm still. We're still with the theories on what caused it.

00:09:22.110 --> 00:09:45.930 Jeff Demitrack: And that's such a big part of epilepsy people speculating of what the cause of their epilepsy was, can can I find a pattern moving forward, you know, and I think that is so frustrating for so many people with epilepsy? It comes out of nowhere, and then they are trying to find a a rhyme or reason to it.

00:09:46.130 --> 00:09:53.499 Sam Diann: Yeah. And unfortunately, unfortunately, sometimes we don't have. We don't have those answers. You know.

00:09:53.950 --> 00:10:07.030 Sam Diann: our brains are so unique. Each seizure, each epilepsy story journey is so unique to each person that you can't really go based on what you see on social media or other people

00:10:07.390 --> 00:10:08.700 Sam Diann: talking about.

00:10:08.720 --> 00:10:13.619 Sam Diann: Yeah, it's it's like that for them. But it may not be like that for you.

00:10:13.760 --> 00:10:21.020 Sam Diann: You know we all have similarities. But our story, our our journey is so unique to each one of us. And that's how epilepsy is. It's

00:10:21.390 --> 00:10:24.150 Sam Diann: it's unique to that person.

00:10:24.680 --> 00:10:42.640 Jeff Demitrack: and that as soon as I started my social media account, that was one thing I wanted to emphasize is that every case of epilepsy is unique. And it's so important that everybody that is trying to understand epilepsy knows that it, that not every case of epilepsy is the same

00:10:43.770 --> 00:10:59.399 Frank R. Harrison: right great, because it depending on the individual and depending on the onset. There could be the genetic based, the Comorbid based you mentioned petty mal earlier, which I guess is now known as partial or refractive, something like that most of the time.

00:10:59.480 --> 00:11:17.130 Frank R. Harrison: Right? Exactly. And II do suffer from that still. Which is why I continue to take Kepra, although my genetic, based grand mal have been seizure free for 18 years, and I used to take Lamby for that. But I no longer take Lamby. So I guess, on one aspect of the spectrum. I'm no longer

00:11:17.190 --> 00:11:25.470 Frank R. Harrison: considered a grand mal epileptic, if that's the right phrase to use. But having seizure conditions due to a lesion.

00:11:25.490 --> 00:11:42.770 Frank R. Harrison: I still live life with epilepsy, and you know, quite frankly, sometimes I would feel almost like vulnerable if I didn't take my medication. I don't know if it's a comfort level, or if it just keeps me calm, because Kepra does have that side effect for me. So

00:11:42.770 --> 00:12:04.060 Jeff Demitrack: Why it's so complicated, because they keep on changing the language of it. And every few years there's a new term for complex partial seizure. And and really and people don't know what they're talking about. I was calling my seizures grand mals until I started my social media year ago.

00:12:04.140 --> 00:12:11.870 Sam Diann: II didn't know it was change satanic clonic until I was on social media. So yeah.

00:12:12.360 --> 00:12:36.189 Frank R. Harrison: interesting. So what like, I found out mine is genetic. So I was always predestined to have it, and usually the onset for genetic is during the puberty years. I guess hormonal output and other kinds of stimuli you go through in those years when you're in school, not having sleep because you're studying for all night exams, or whatever the other triggers might be, it just creates. Okay. The gene has now been

00:12:36.190 --> 00:12:52.299 Frank R. Harrison: provoked. You will be a genetically based epileptic person. Ironically, my onset was in my history class, too. So it's very interesting that we have that in common, you know. Maybe I was. My brain decided to go.

00:12:52.580 --> 00:13:08.530 Sam Diann: Hormonal related mine. I believe mine are hormonal, related. I believe I have catomenial epilepsy, because my first seizure started about a week or so around my first menstrual cycle, and ever since then.

00:13:08.650 --> 00:13:11.099 Sam Diann: like clockwork every month

00:13:11.470 --> 00:13:14.470 Sam Diann: around my menstrual cycle comes a seizure.

00:13:14.570 --> 00:13:26.420 Sam Diann: It wasn't until I gave birth to my daughter that I was seizure free for 2 years no medication, nothing. And then I had a seizure, and now I just have them about

00:13:26.580 --> 00:13:33.810 Sam Diann: every few months. But I take my rescue medicine that prevents me from having a tonoclonic seizure

00:13:34.970 --> 00:13:58.250 Frank R. Harrison: while we're about to take our first break. Just want to read 2 comments that have come in from Roddy TV on Youtube, nice background plant, which is what you have right there behind you. And Roddy also says, and I quote, I used to think all seizures were epilepsy, and all epilepsy is just seizures. I've learned so much since coming across Sam Diane's social media.

00:13:58.250 --> 00:14:19.679 Frank R. Harrison: So you definitely have a following base. And we're gonna learn more about that in the next segment, right here on frank about health. So, ladies and gentlemen, please stay tuned as we are here with Sam Diane figuring out epilepsy, which is also the name of her. Podcast we will be back in a few right here on talk radio dot? Nyc, Facebook, Youtube, Linkedin and twitch. See, you soon.

00:16:33.070 --> 00:17:01.989 Frank R. Harrison: hey, everybody and welcome back. And as you just seen him during the commercial break, I was showing right there on Amazon a picture of her podcast figuring out epilepsy and for that reason. Sam, I'd like to devote this segment of Frank about health to learn more about that podcast and that what is it? You talk about the type of guests you have. Was Jeff on there by any chance? Who knows? Maybe he can be at a later date, you know. At the same time I'd I'd like to learn more about what kind of topics you discuss in the podcast. When it comes to

00:17:02.230 --> 00:17:03.310 Frank R. Harrison: epilepsy.

00:17:04.180 --> 00:17:15.519 Sam Diann: So my podcast. Is about what life is like with epilepsy. I invite anyone who has a story with epilepsy.

00:17:15.880 --> 00:17:19.940 Sam Diann: raw ratty TV. He was actually one of my guests on

00:17:20.460 --> 00:17:27.150 Sam Diann: on my podcast, he does not have epilepsy, but he did experience someone having a seizure

00:17:27.200 --> 00:17:28.879 Sam Diann: at one of his old jobs.

00:17:28.920 --> 00:17:38.069 Sam Diann: So II allow my platform to be for anyone who wants to talk, talk about their journey. Also talk about their experience with epilepsy

00:17:38.090 --> 00:17:41.750 Sam Diann: as a caregiver, as a parent.

00:17:41.940 --> 00:17:47.469 Sam Diann:  I had rod. I also had another friend who

00:17:48.140 --> 00:17:51.050 Sam Diann: who doesn't have epilepsy, but she also has

00:17:51.130 --> 00:17:55.080 Sam Diann: she has. She lives with a chronic illness, a different chronic illness then

00:17:55.250 --> 00:17:59.100 Sam Diann: myself and I've talked to people in the

00:17:59.190 --> 00:18:03.449 Sam Diann: epilepsy community who've written books on

00:18:03.910 --> 00:18:12.200 Sam Diann: on epilepsy. Jeff. Of course he's gonna be one of my my guests. I haven't asked him. But he is I

00:18:12.330 --> 00:18:13.840 Frank R. Harrison: nice.

00:18:13.880 --> 00:18:18.450 Sam Diann: Yeah. So it's it's it's really. I try to focus on

00:18:18.850 --> 00:18:32.459 Sam Diann: really, the mental and emotional aspects of epilepsy, because that's the hardest thing that I've dealt with when it came to my journey is just the mental and emotional aspects of dealing with it, and just feeling like a burden and alone.

00:18:32.930 --> 00:18:40.600 Sam Diann: I didn't talk about my epilepsy for 20 years. I it wasn't until yeah. It wasn't until my brother

00:18:40.770 --> 00:18:49.410 Sam Diann: helped me accept my epilepsy that I started talking and creating. I first created a blog. Now podcast and

00:18:50.180 --> 00:18:51.020 Frank R. Harrison: right.

00:18:51.560 --> 00:18:57.720 Jeff Demitrack: So what did you hold it inside? And you know it what came out all at once, and

00:18:58.450 --> 00:19:06.840 Sam Diann: I I would hold it everything that I was feeling. I would hold it, or I would journal it. I've been journaling since I was

00:19:07.280 --> 00:19:25.589 Sam Diann: maybe like 1011 years old. It's something that my dad and I have in common. We love writing so he showed me like. Hey, you're you're you're dealing with some things that you don't always wanna talk about. So he got me a a journal, and I've I've been journaling ever since. I think that's a huge help that

00:19:25.740 --> 00:19:38.390 Sam Diann: kept me somewhat sane in those years that I did not speak about epilepsy because III didn't talk about it with my family, my friends. When my family would bring it up, I would

00:19:38.560 --> 00:19:42.050 Sam Diann: kind of change the subject. They would.

00:19:42.060 --> 00:19:46.289 Sam Diann: you know, be concerned about something I'll be like, oh, you're you're

00:19:46.450 --> 00:19:53.499 Sam Diann: you're you worry too much. You're it's it's not that bad. My epilepsy is not that bad, but in reality I'm

00:19:53.680 --> 00:19:57.509 Sam Diann: falling on the ground every time I have a seizure. So

00:19:57.730 --> 00:20:12.819 Jeff Demitrack: journaling is so important. People relate to that, especially people with temporal lobe epilepsy. We, I talk about hyper graphia, and how you know so many people with temporal lobe epilepsy have that.

00:20:13.040 --> 00:20:22.850 Sam Diann: Yeah, I think I think darling is a huge help, you know. They suggest to have a seizure diary.

00:20:23.310 --> 00:20:32.180 Sam Diann: that that my mom? When I was growing up, my mom did the seizure diary for me, and that's how we figured out what my triggers were.

00:20:32.250 --> 00:20:43.429 Sam Diann: And then the journaling was just me what I was going through. So I think, and then they I also do gratitude journaling. So it's a specific type of journal where you just

00:20:43.480 --> 00:20:54.210 Sam Diann: talk about everything that you're grateful for, and it keeps you in a more positive light, because sometimes sometimes epilepsy gets pretty dark. I I've dealt with a lot of mental health issues.

00:20:54.880 --> 00:21:24.499 Frank R. Harrison: Yes, yes, and that's what Frank about health tries to do. As a result, I mean II can say that my comorbidities are of the mental health variety. I have a a regulated sense of Ptsd. I've been exposed to narcissism all over the place, even within families, and I've dealt with depression and anxiety and other kinds of issues. But what I find interesting. And I'm sure you've experienced this. Sam is that just doing the podcast and itself helps regulate all of that.

00:21:24.540 --> 00:21:30.719 Sam Diann: Oh, yes, you know. Since I started? Yes, since I started

00:21:31.350 --> 00:21:43.430 Sam Diann: posting on social media and the podcast and everything, I feel like, I can be myself, like, there has been a weight lifted off my shoulders, and I can just be myself. I don't have to hide

00:21:43.460 --> 00:21:47.689 Sam Diann: that part of me that is, socially.

00:21:47.770 --> 00:22:02.219 Sam Diann: You know what. However, people want to consider it. You know unacceptable the stigmas that come with it. I don't have to worry about that. I can just be myself regardless how people view me and my epilepsy?

00:22:03.030 --> 00:22:11.870 Jeff Demitrack: A. And you told me that you're an outgoing person. Naturally. So you know, having a podcast it is. It's for you.

00:22:12.270 --> 00:22:16.189 Sam Diann: I am a outgoing person, but

00:22:16.340 --> 00:22:24.410 Sam Diann: on video and on camera I can be quite shy. So I'm outgoing if it's like.

00:22:24.820 --> 00:22:46.659 Sam Diann: if it's just close friends. And, Stephen, we're just having conversations like that. But once you put me on camera, I'm like, Oh, oh, no! I start first time you go on camera. I think you it's natural for anyone to feel a little bit shy. It it's a little bit just

00:22:46.770 --> 00:23:00.949 Frank R. Harrison: nerving. I don't know. I just makes you a little bit nervous. You do get used to it. I find myself getting used to being on camera more and more, and I'm posting more and more videos. You kinda get used to it. Yeah.

00:23:01.530 --> 00:23:17.329 Frank R. Harrison: well, II it seems to me that I mean you were basically more succumbed to the stigma, because I don't know if you were coached along with a neurologist or somebody a medical professional that you would see once a year or twice a year.

00:23:17.480 --> 00:23:26.309 Sam Diann: II see since I was diagnosed I've been seeing my neurologist for every 3 months. I see my neurologist

00:23:26.430 --> 00:23:30.510 Sam Diann: growing. Yeah, growing up.

00:23:31.050 --> 00:23:34.379 Sam Diann: Pete Minor. We did. I did not get along with my neurologist

00:23:34.500 --> 00:23:38.700 Frank R. Harrison: growing up. I did not get along with him.

00:23:38.910 --> 00:23:45.640 Sam Diann: My, we were in constant battles, and I. When I say we, I mean me and my mom, cause she was the one that was right there.

00:23:45.660 --> 00:23:48.260 Sam Diann: you know, advocating for me. And

00:23:49.520 --> 00:23:56.530 Sam Diann: yeah, during that time we did not get along with him, because we would tell him, hey, my hormones have something to do with my seizures.

00:23:56.650 --> 00:24:09.249 Sam Diann: My! My! My hormones are triggering it. It's it's always around my menstrual cycle. But he did not want to believe us. I didn't know katamanial epilepsy was a thing until I started getting more involved with the epilepsy community.

00:24:10.040 --> 00:24:24.859 Jeff Demitrack: And I think a lot of people can relate to that that they have a neurologist that is not listening to you that wants to do it their way. They have a medication in mind, and they want you on that medication, and they don't want to hear anything else.

00:24:25.010 --> 00:24:35.309 Sam Diann: Yes, and then with me, my! My! My weight would always fluctuate. So it like. and and my medicine was based on my weight.

00:24:35.730 --> 00:24:56.119 Sam Diann: So my medicine was never where it was supposed to be, and my my end. My neurologist just accused me of dieting, and this and that when my mom was just like pumping food in me and like shakes, and just making sure I have a good healthy diet. Sometimes I would force myself to eat because I didn't want to get yelled at by the neurologist.

00:24:56.180 --> 00:25:07.369 Sam Diann: Even to this day. Sometimes II like, I force myself to eat, because that can cause me to have a seizure. you know not a not eating well is a is a tricker of mine.

00:25:08.250 --> 00:25:12.349 Frank R. Harrison: so you have never been told by any doctor that you have.

00:25:12.780 --> 00:25:15.160 Frank R. Harrison: I see I'm sorry. Say that again, Jeff.

00:25:15.670 --> 00:25:38.970 Sam Diann: I think that diet and a consistent and healthy diet is a tri. If you don't stay on that diet. It it can be a trigger. Jeff has been like my trainer lately, because I've go to him. I know he's he's really big on exercise and diet. And that's what I'm implementing in my life this year. And I'm and I'm like.

00:25:39.300 --> 00:25:59.540 Jeff Demitrack: Oh, I just started running, but I can't run, because sometimes, like I, my eyes start twitching. I feel like, maybe I'm gonna have a seizure. Maybe not. So Jeff is kind of guiding me on how to implement, you know proper diet and exercise. So every day II think all you have to do is just take a walk.

00:25:59.750 --> 00:26:10.280 Jeff Demitrack: you know, I mean, and and that will keep you healthy and and or just to not eat so much junk food, you know. If if you have a sweet tooth or something like that.

00:26:10.310 --> 00:26:37.839 Frank R. Harrison: That's my problem. I have the biggest sweet tooth and sugar is a trigger. I have a question. Hello, okay. So, Sam, that being said. If a doctor was to tell you that you have genetic, based epilepsy, would you find yourself in the mindset to agree with them at this point, or would you still be resistant, or feel you're not sure, or what would be your take away from that kind of diagnosis?

00:26:37.840 --> 00:26:44.300 Sam Diann: I would be open to what the doctor has to say. I would want to see the proof.

00:26:44.680 --> 00:26:47.170 Sam Diann: Where does it show in my test

00:26:47.230 --> 00:26:51.709 Sam Diann: that it's that that's the kind of epilepsy I have. That is genetic base.

00:26:51.950 --> 00:26:57.570 Sam Diann: And I would wanna. And I would have questions like, Okay, so what does that mean? Now.

00:26:57.670 --> 00:27:05.080 Sam Diann: what what does that mean as far as my epilepsy journey, because for so many years, for

00:27:05.460 --> 00:27:10.350 Sam Diann: well, how long it's been! It's been over 20 years with me, having epilepsy.

00:27:11.320 --> 00:27:23.189 Sam Diann: Now it's now it's completely changed. I just, I just need to know, like, Where is my life gonna go from now? Is my treatment gonna be the same? Is, are we gonna try new treatments? What's what's gonna happen?

00:27:24.010 --> 00:27:40.199 Frank R. Harrison: Right? Right? The one thing the one thing I could tell you as one who has been diagnosed with genetic, based epilepsy. I've been given the medications for those living life with epilepsy that are genetically programmed for those fitting the criteria.

00:27:40.310 --> 00:28:00.090 Frank R. Harrison: I've had debico. Then I went to L'amictol, and it was Lamictol that turned off the trigger. But the thing is is that it required seeing an epileptologist here at the Nyu Langone comprehensive epilepsy center. So if you don't have that kind of doctor which II myself had

00:28:00.290 --> 00:28:15.830 Frank R. Harrison: neurologists that were treating me like, oh, you just have the seizure of the moment. Let me give you the drug of the moment. And of course, when I grew up and I went to school and studied this more. You know II got my whole, my master's degree in neuroplogy.

00:28:15.920 --> 00:28:38.019 Frank R. Harrison: and I was trying to understand the comorbidities of depression and anxiety and also understand the genetic basis. This was the place. I learned it, and now I learned, instead of being resistant to it, how to like, we said earlier, be an epilepsy warrior over it and re-educate people, because that's the only way you can remove stigma. It's education

00:28:38.100 --> 00:28:39.360 Frank R. Harrison: and communication.

00:28:39.380 --> 00:28:58.580 Sam Diann: And I'm really, I'm actually trying to see an epilepsologist. I hope, I said, that I'm having such a hard time with that work, but I'm actually trying to see. I will love one that would be amazing. Thank you. I yeah, I'm really trying to see one, because, you know, with with my epilepsy

00:28:59.190 --> 00:29:13.890 Sam Diann: me, I believe that my epilepsy has to do with my hormones. So I really want to get the proper treatment, because, as of right now, I take let Mecto and Zonergan, I also take Clon out to Pam

00:29:14.000 --> 00:29:23.950 Sam Diann: as my rescue medicine. So II just want to know if it's the proper medication for me and and my situation. Yeah.

00:29:24.180 --> 00:29:32.060 Frank R. Harrison: Well, we had to take another quick break, but when we return I will give you all that information. Live with everyone listening because

00:29:32.170 --> 00:29:48.140 Frank R. Harrison: Nyu's epilepsy center is analyzing genetic causes and looking for cures. And it's also a teaching hospital. So I will be able to give that all to you when we get back. So, ladies and gentlemen, you all know. Just stay tuned to these next few messages, and we'll be back in a few.

00:31:49.650 --> 00:32:15.209 Frank R. Harrison: hey, everybody, and welcome back just a few announcements. What I just showed you during the commercial break is Jeff to me. Tracks book dating in the dark now available and audio book as well. And basically it, he, this is my also promotion to get him on your show, Sam. So you're doing the right thing by having him be one of your next guests. That all being said, I'm also, gonna do a comment that Roddy just issued out during the break

00:32:15.270 --> 00:32:26.759 Frank R. Harrison: quote unquote. Do you guys think more people experience anxiety and depression now more than ever, or has it always been as prevalent. And now we are just all admitting to these things.

00:32:26.950 --> 00:32:33.989 Frank R. Harrison: I have my opinions. But I'm gonna let first you, Jeff, and then you, Sam, talk about what Roddy is asking.

00:32:34.030 --> 00:32:35.300 Frank R. Harrison: Starting with you, Jeff.

00:32:36.170 --> 00:32:45.739 Jeff Demitrack: II think that it's more prevalent now there, and the statistics show that it is.

00:32:46.930 --> 00:32:47.970 Jeff Demitrack: and

00:32:48.000 --> 00:33:03.689 Jeff Demitrack: I would say that. Yes, the the pandemic didn't help. You know it us staying inside, you know, I mean increased social anxiety.

00:33:04.350 --> 00:33:07.020 Jeff Demitrack: And

00:33:07.090 --> 00:33:08.530 I would say.

00:33:08.720 --> 00:33:22.179 Jeff Demitrack: you know, I I'm thinking about this, because really there, there, there isn't a wrong answer to this. So there are so many different types of anxiety and and

00:33:22.310 --> 00:33:36.299 Jeff Demitrack: so many different types of depression as well. So I think that we have to be not careful, but understand what? Our best way to cope is

00:33:36.460 --> 00:33:40.150 Jeff Demitrack: and move forward with our

00:33:40.230 --> 00:33:52.950 Jeff Demitrack: anxiety. If we know that we have that because there is a healthy anxiety, and and we have to use that to be productive in society.

00:33:53.880 --> 00:33:54.650 Frank R. Harrison: Right.

00:33:55.180 --> 00:33:57.699 Jeff Demitrack: Sam, what do you have to say about Roddy's comment.

00:33:58.230 --> 00:34:01.170 I agree with Jeff that

00:34:01.530 --> 00:34:06.789 Sam Diann: it's you know we. We're seeing it a lot more. But I also think it's because

00:34:06.960 --> 00:34:15.970 Sam Diann: people are speaking out about it a lot more, too. You know I see it. I see it a lot with men now

00:34:16.000 --> 00:34:24.420 Sam Diann: that men are starting to speak up, and and you know, admit that they have anxiety or depression. When

00:34:24.500 --> 00:34:37.240 Sam Diann: you know back then it wasn't. It wasn't considered manly or masculine to admit to something like that. And you know we're we're seeing it more and more on social media. Where guys are saying, Yeah, II ha! I deal with this.

00:34:37.380 --> 00:34:45.989 Sam Diann: You know. I see it within my own family who have talked about it. So II think the fact that we're speaking about it more is definitely helping.

00:34:47.130 --> 00:35:06.220 Frank R. Harrison: Oh, yeah, yeah, just it's like you're releasing what's on your mind most of the time, and if you're used to keeping things hidden because you're concerned about the stigma associated with it, it's when you release it out there, especially on a podcast platform that you have the sense of calm and relaxation after you're finished your show. I know that has that's what happens to me every week.

00:35:06.320 --> 00:35:15.910 Frank R. Harrison: But to answer your comment, Roddy. I think that anxiety and depression are comorbid illnesses or side effects

00:35:16.010 --> 00:35:22.099 Frank R. Harrison: of people living life with epilepsy, the more frequent your seizures, the more depressed you would get.

00:35:22.400 --> 00:35:44.489 Frank R. Harrison: The anxiety could be just the social trepidation of feeling like, if you have a tick or an aura, or some sensation that doesn't feel right. You're like getting anxious about what it's where you need to be, or how to prevent falling and hitting your head, or or what you're gonna look like, especially if it's at a social function. So the anxiety is more socially based, in my view.

00:35:44.960 --> 00:36:08.520 Frank R. Harrison: But the depression is definitely when you're using medication anti-convulsive to slow the brainwave patterns and prevent the frequency of seizures, especially if you have 10 10 a day, or God forbid if you're if you're Lennox syndrome! That's a very sad story or a sad case. But the thing is is that depression isn't expected.

00:36:08.520 --> 00:36:26.709 Frank R. Harrison: Comorbidity of epilepsy. So that being said, I think people are willing to talk more about epilepsy because they want to prevent the depression from consuming their lives overall, even when they're not having seizures. And what Jeff alluded to about Covid is that we were all experiencing.

00:36:26.710 --> 00:36:48.950 Frank R. Harrison: you know, disassociation from each other and wearing masks all the time, and and whether or not the you know, the disease was real or or imagined. So I think that would just, you know, make anyone anxious or depressed. And so what's ironic is while epilepsy is not a comorbidity of Co. Of Covid, nor, if you had epilepsy, would you be guaranteed to get it.

00:36:48.950 --> 00:36:59.180 Frank R. Harrison: but it basically allowed us, or already lived with a condition that had a stigma to be more vocal about it, while everyone was absorbed around Covid.

00:36:59.310 --> 00:37:03.490 Frank R. Harrison: you know. So it gave Covid actually gave us much of a higher platform.

00:37:03.710 --> 00:37:17.730 Jeff Demitrack: you know, so I would have to say that in some ways important how you manage your stress, too. Especially people with epilepsy, because stress is such a high trigger

00:37:17.810 --> 00:37:31.659 Frank R. Harrison: for a lot of people. Yeah, right? Right? But but I was gonna conclude by saying, in some ways, Roddy, it appears that we are just all admitting it now. But people within the epilepsy community have been admitting it for over 10 years now.

00:37:31.730 --> 00:37:41.910 Frank R. Harrison: So you really have to think in terms of the individuals that are admitting it. How severe is their epilepsy! Are they just living with people who have it when they don't?

00:37:41.970 --> 00:38:05.250 Frank R. Harrison: And those advocates, of course, will admit it more as well because they want to create the social support network that those patients need. And to echo Jeff's comment on managing your stress. It kinda alludes to your next comment, Ratty, about Sam being a huge advocate for men's mental health, because think about it. If men are programmed by societal standards not to show vulnerability.

00:38:05.370 --> 00:38:07.390 Frank R. Harrison: the stress is going to be much higher.

00:38:07.490 --> 00:38:14.810 Frank R. Harrison: All right. So you, Sam, advocating on your platform, is allowing people

00:38:14.870 --> 00:38:18.809 Frank R. Harrison: like myself, men like Jeff to go out there and

00:38:19.080 --> 00:38:33.649 Frank R. Harrison: shout that we have epilepsy with pride, because there are opportunities that befall us when we are open about it. I know I've seen that in my life, so I guess I'm kinda hoping. That's what you are all experiencing, as well.

00:38:34.030 --> 00:38:43.010 Frank R. Harrison: you know. And I know you at the same time, Sam, I was gonna tell you about how you can diagnose. If your epilepsy is genetic in nature.

00:38:43.210 --> 00:38:55.059 Frank R. Harrison: I'm going to give you the name of a doctor, Dr. Daniel Luciano, who's located at the Nyu Langone, comprehensive epilepsy center who does a lot of genetic based studies

00:38:55.120 --> 00:39:00.810 Frank R. Harrison: on epilepsy as well as he's been involved in looking at

00:39:01.060 --> 00:39:08.720 Frank R. Harrison: What was that show that we did Jeff on psychogenic seizures. He's also talked about that.

00:39:08.750 --> 00:39:14.180 Frank R. Harrison: And then psychogenic seizures when it comes to

00:39:14.300 --> 00:39:25.059 Jeff Demitrack: advocacy, because I think that you know it. This show it. It comes back to trauma a lot of you know.

00:39:25.170 --> 00:39:38.560 Jeff Demitrack: Trauma comes back you. You want to advocate for yourself. You need to advocate for yourself, and you know, especially when you have experienced trauma

00:39:38.660 --> 00:39:44.620 Jeff Demitrack: and a lot of people with psychogenic scissors, you know that that's the reason why they're having it

00:39:45.820 --> 00:39:58.840 Frank R. Harrison: correct, Jeff. But Sam, that man, Dr. Daniel Luciano, also works with Dr. Orin da Vinsky, who was one of the first advocates for cannabis treatment for epilepsy back in 2016.

00:39:58.980 --> 00:40:02.899 Frank R. Harrison: And there are also psychiatrists on staff

00:40:03.090 --> 00:40:18.369 Frank R. Harrison: that would be able to address those trauma issues that you talk about, Jeff, because whether the trauma is Ptsd related, or whether it's unfortunately being hit by a car, let's say, and suffering seizures because of a coma you were in

00:40:18.370 --> 00:40:35.939 Frank R. Harrison: that it could be a physical or a psycho psychological trauma that would have its role in epilepsy formation or in trying to manage your life with epilepsy, which may have become a comorbid illness. As a result of that head trauma, or whatever was going on.

00:40:36.310 --> 00:40:50.080 Frank R. Harrison: so I hope I was able to provide you, Sam, and you, Rottie, with answers to your questions. And Sam again, if you want the information on the doctor, email me after the show, and I can give you all the location information. We can talk more about that.

00:40:50.300 --> 00:41:13.830 Frank R. Harrison: you know. The other thing is, Roddy, you have another comment. Thank you for giving your thoughts. Well, Sam, I gotta have you on my show more often. Bring all your trial with you, you know it says, thank you for giving your thoughts, loving this live and subscribing. You know what Logan behind the scenes we have. I think our hundredth subscriber now from Frank about health.

00:41:13.830 --> 00:41:33.740 Frank R. Harrison: So thanks, Rob, I'm happy. Yes, thanks, Rod, you know and also check out all of the other shows we've done, especially on mental health issues. So you would be able to get a broader spectrum about what Frank about health does. But again, Sam, you and Jeff need to get together and do a show in February.

00:41:33.740 --> 00:41:44.469 Frank R. Harrison: and at the same time hopefully, I'll have you and Sam. I'll I'll have you, Sam, and you, Jeff, come with me, live at a Hilton in the next 6 to 8 weeks. So

00:41:44.470 --> 00:42:04.700 Frank R. Harrison: we can really follow up this conversation beyond just promoting your podcast which, from what I'm seeing even on your tick, tock reels that I've also took a look at you definitely are leading the charge in an area of epilepsy which II really wholeheartedly believe. Again, I'm not a doctor, but I wholeheartedly believe yours is genetic based.

00:42:04.760 --> 00:42:12.279 Sam Diann: Okay? Okay, I definitely need to to get get in contact with that doctor.

00:42:13.120 --> 00:42:19.979 Frank R. Harrison: Okay? And so meanwhile, Jeff, did you have any other comments about trauma? I'm sorry if I interrupted you there for a second.

00:42:20.270 --> 00:42:29.760 Jeff Demitrack: No, I was just. It was something that just came to mind that I wanted to mention earlier in the show. and

00:42:29.840 --> 00:42:48.580 Jeff Demitrack: you know why advocacy is important. I had something written down here, I mean. Sometimes it is uncomfortable and difficult to know what the right things to say are, especially when advocating for yourself your health, and possibly even for someone else's help.

00:42:48.590 --> 00:43:06.989 Jeff Demitrack: And today, when you hear the stories of those living with epilepsy, it seems like the topic of trauma comes up so often, and many forms of trauma, sexual trauma, cultural trauma, emotional trauma, and and many of these traumas are associated with psychogenic seizures.

00:43:07.000 --> 00:43:13.179 Frank R. Harrison: and the. It's uncomfortable conversations. But it's time to have these conversations

00:43:13.310 --> 00:43:14.570 Frank R. Harrison: absolutely.

00:43:14.600 --> 00:43:29.729 Frank R. Harrison: because who better than to help people deal with things, whether it's covid or God forbid. The next pandemic or epidemic that occurs, or other kinds of life altering conditions that people can actually live with.

00:43:29.810 --> 00:43:54.680 Frank R. Harrison: We know best from our own experience, that is, that it is possible to live a high quality life, even with the condition most, the quick responses. Where's the cure? Where's the cure? But sometimes there are no cures, just solutions, and that's what I think all of us need to take away especially before we go to our next break. So that being said, when we return, we will talk more about the future of

00:43:55.220 --> 00:44:12.010 Frank R. Harrison: following life with epileps following epilepsy. Please please announce your show in the right way, figuring out epilepsy. Thank you. Thank you as well as the future, with stages of epilepsy and frank about health. We'll be back in a few.

00:46:14.720 --> 00:46:35.179 Frank R. Harrison: welcome back just wanted to show you guys we are streaming. Live on Youtube. And thanks again for Roddy for your participation on this show. Also again. Thank you, Sam, for talking about your journey. Apparently you sound a lot like me that it's something that you live with, and you're going to make the best out of it, and

00:46:35.250 --> 00:46:44.779 Frank R. Harrison: that's the right path to have at this point, instead of worrying about stigmas, I mean again, at this point. They're just messages and just not the people for you in your, in your, in your pathway.

00:46:44.940 --> 00:46:57.460 Frank R. Harrison: you know, rather than worried about what people think. It's just a message that they're not the individual that is, gonna expand the boundaries of your success, your individuality, your quality of life. And you wanna find those people.

00:46:57.500 --> 00:47:18.559 Frank R. Harrison: So that, all being said, maybe I'm on my own little soapbox right now. But I'm really honored that you have appeared what is technically my 100 and second show. And when it all began, as really was, gonna be called frank about epilepsy, it now has become into a very viable ecosystem

00:47:18.560 --> 00:47:27.959 Frank R. Harrison: for various communities. And I'm looking forward to this year, expanding it further. And I think someone with your experience already, especially

00:47:27.960 --> 00:47:42.949 Frank R. Harrison: with your podcast and on social media. I hope we get to collaborate more together in the future, as as Jeff and I have done over the past year, you know in terms of the future of Frank about health. I only

00:47:43.420 --> 00:47:51.650 Frank R. Harrison: knock on wood. I only see a lot of progression happening in the next few months, but at the same time that is also based on

00:47:52.050 --> 00:48:08.829 Frank R. Harrison: the participation of the hosts and the guests. And and of course, now our social media audience, that is interacting with us. So that all being said, Jeff, can you tell us of some insights that you're gonna be exploring over the next few months, besides being on Sam.

00:48:10.600 --> 00:48:12.710 Frank R. Harrison: Oh.

00:48:12.840 --> 00:48:15.820 Jeff Demitrack: insights of stages of epilepsy.

00:48:16.570 --> 00:48:22.549 Frank R. Harrison: yeah, or any walks that you're going on, or any kind of social events that you're gonna be hosting.

00:48:22.760 --> 00:48:37.540 Jeff Demitrack: Oh, I was going to go well, on a walk this year at some point. I haven't figured that out because it's still early in the year, and they're still posting it on the Epilepsy Foundation website. So

00:48:37.760 --> 00:48:38.700 Jeff Demitrack: and

00:48:38.900 --> 00:48:53.369 Jeff Demitrack: well, I'll try to get to the West Coast II always go to Phoenix. But I'm going to try to make it maybe to Utah or somewhere out there. I don't know Colorado or something like that.

00:48:53.770 --> 00:48:55.529 Frank R. Harrison: Yeah, right? Right?

00:48:55.900 --> 00:49:00.520 Frank R. Harrison: No. That's awesome. And you deal well that closely with the epilepsy foundation. Right?

00:49:01.750 --> 00:49:07.879 Jeff Demitrack: Well, they are usually the ones that sponsor the epilepsy walks. Yeah.

00:49:08.780 --> 00:49:32.339 Frank R. Harrison: right? Right? I know my. My involvement continues to be with faces finding a cure for epilepsy and seizures right here at Nyu they had their annual conference their annual game day. Sometimes their conference may look at Mrna vaccines for epilepsy, which I think is a long road away, but the thing is, it's promising, and I think the more we communicate about epilepsy and advocate for it.

00:49:32.340 --> 00:49:40.319 Frank R. Harrison: we can find, if not necessarily a cure, just a better way to live life with it, and that's all we can really hope for. But

00:49:40.540 --> 00:50:07.759 Frank R. Harrison: you can't. Once you start, you definitely can't stop. It's it's something that you have to also become more mindful, as as Roddy was asking about earlier to the mental and neurological comorbidities that are tuned to people with epilepsy, whether it's what they said, petty, mal grand, mal genetic, based comorbid, or even psychogenic. Everyone is a different case and a different story. But epilepsy

00:50:08.280 --> 00:50:24.549 Frank R. Harrison: see, or rather are, the symptom of something deeper. And I think that by talking about epilepsy we get to know what the deeper cause is, and learn to treat that which is what most people it. Historically, one of our biggest shows was the the struggle for independence.

00:50:24.590 --> 00:50:32.720 Jeff Demitrack: And one guarantee that you have when living with epilepsy is that there's gonna be more adversity.

00:50:32.760 --> 00:50:40.560 Jeff Demitrack: There's going to be more struggles. And and when, having seizures you, you might lose things.

00:50:40.620 --> 00:50:48.459 Jeff Demitrack: or you might have disappointments that because you plan something and seizures get in the way.

00:50:49.760 --> 00:51:11.730 Frank R. Harrison: Yeah. Yeah. And John Lennon did say, life is what happens when you're making other plans. So the thing is is that if you take those mantras as part of your own. let's just say roadmap. I wanna say your own Bible, but your own roadmap, as you continue to live life and advocate with epilepsy, they can be subtle messages and support

00:51:11.820 --> 00:51:21.699 Frank R. Harrison: support experiences supporting experiences rather than moments of disappointment. Sometimes what you've lost was meant to be lost, otherwise it would have held you back in a different way.

00:51:22.190 --> 00:51:27.879 Frank R. Harrison: You know that's what I've taken away from it, you know overall.

00:51:28.150 --> 00:51:32.920 Frank R. Harrison: I'm interested to know more, Sam. How did you manage to get yourself on Tiktok

00:51:33.080 --> 00:51:44.259 Frank R. Harrison: with us, with with an issue like epilepsy? I mean, I find it difficult to even see nutrition or any any other healthcare topic on something that only lasts 2 to 3 min long.

00:51:44.810 --> 00:51:52.940 Sam Diann:  I well, when I first started my social media journey, I wanted to expand to other

00:51:53.010 --> 00:52:05.710 Sam Diann: channeled other platforms. I eventually want to do like a Vlog style Youtube channel where I show everyone my life what it's like with epilepsy, the not so pretty parts.

00:52:05.780 --> 00:52:16.670 Sam Diann:  and tick tock. I you know I it tick. Tock is so popular, and I love being on Tiktok. So I really, I really incorporated

00:52:16.690 --> 00:52:32.349 Sam Diann: the trends. What you know, whatever's going on and on, Tiktok and kind of incorporated into epilepsy because a lot of things, you know it. It kind of weaves into our lives with epilepsy. So that's where that's really what I'm trying to show people is that

00:52:32.410 --> 00:52:47.859 Sam Diann: you know you can. You can live a normal life with epilepsy. You can  have a dreams and goals and and be ambitious. You don't have to let your epilepsy stop you from living your life

00:52:48.910 --> 00:52:50.639 Frank R. Harrison: right? Right?

00:52:50.760 --> 00:53:05.899 Frank R. Harrison: And that message has to be shouted multiple times in multiple volumes in multiple locations 24, 7, 3, 65, or in this case 3, 66 for 2024, you know.

00:53:06.080 --> 00:53:13.220 Sam Diann: And I always say, too, I have it on on my Instagram that epilepsy is not the end, but rather the beginning, to something different.

00:53:13.330 --> 00:53:17.200 Frank R. Harrison: So if you have that that positive

00:53:17.300 --> 00:53:25.280 Sam Diann: attitude towards life with a chronic illness. It just it gets better. And you feel like you're more free.

00:53:26.480 --> 00:53:28.230 Frank R. Harrison: right? Right?

00:53:28.420 --> 00:53:53.080 Frank R. Harrison: You know. What I could say is that while we all talk about comorbid illness associated with epilepsy, there's also what I've discovered, and I don't know. Maybe you, Jeff, or you, Sam, could echo this I discovered comorbid gifts, or instincts, or intuition, or creative ideas, or opportunities that you would not have probably had if you didn't have a history of seizures. Would that be safe to say in either one of your cases?

00:53:53.390 --> 00:53:55.180 Sam Diann: Absolutely.

00:53:56.320 --> 00:54:17.310 Jeff Demitrack: yeah. I mean, we talked about this. Oh, go ahead. Well, we talked about this on our neurodiversity show that people with epilepsy. Maybe they are more empathic to other people. And they have this. You know.

00:54:17.420 --> 00:54:26.479 Jeff Demitrack: skill. Or they have this talent of understanding what they're feeling from other people. And

00:54:26.590 --> 00:54:33.339 Frank R. Harrison: and you know, so they have this intuition that they didn't have before they were diagnosed.

00:54:34.480 --> 00:54:50.909 Frank R. Harrison: Because you figure if you're always feeling well, am I? Have? Am I feeling good today? Am I about to have a seizure? Meanwhile you look sad. I think I understand what you're feeling. You know, you that empathic thing that you're talking about, and also always the interest in trying to understand what is unexplainable.

00:54:51.440 --> 00:54:59.070 Frank R. Harrison: you know there's no stigma. If you're looking to understand why. you know, stigmas are for people who don't want to be bothered. That's the way I look at it

00:54:59.140 --> 00:55:21.540 Frank R. Harrison: just like what your shirt says. Pretty sure I sees the wrong day.

00:55:21.760 --> 00:55:39.899 Frank R. Harrison: No, but it it has its role. I could see that. Oh, oh, I thought Riley made another comment. Oh, no! Sorry. I'm just seeing the warning that we're 2 min to end. G, you know what? Sam? As you know, when you gotta forgive me. I'm about to say the the cheers joke. You probably heard Sam and Diane.

00:55:40.100 --> 00:55:43.509 Frank R. Harrison: I actually haven't heard it.

00:55:44.420 --> 00:55:47.750 Frank R. Harrison: Wow. So actually talk about empathy.

00:55:47.820 --> 00:55:53.010 Frank R. Harrison: Okay, well, I was about to say Sam and Diane. But I am gonna say, Sam and Jeff.

00:55:53.140 --> 00:56:05.210 Frank R. Harrison: we're about 2 min to ending. So that being said, we need to have another show together, maybe next month, or maybe the month after, and maybe a Hilton. So we'll just plan that out as soon as

00:56:05.280 --> 00:56:34.550 Frank R. Harrison: yeah. And as soon as we get off the show, please email me. So I can have your E, well, I do have your email address. But email me a reminder to get you the information at the Nyu comprehensive epilepsy Center. So you can do whatever you need to do to find out more about your epilepsy. So that'll be said, ladies and gentlemen, tomorrow slate of shows on talk radio, dot Nyc. Will begin at 10 Am. With philanthropy and focus, and Tommy d. At 110'clock. Always Friday with Steve Frey 120'clock and tangify with Matthew as well.

00:56:34.550 --> 00:56:49.479 Frank R. Harrison: Tuesday at 5 Pm. We will have the hard skills with Dr. Mira Branku, and then next Thursday, after the conscious consultant hour with Sam Liebowwitz at 12 noon, I'll be back with another episode at 5 pm. Of Frank about health.

00:56:49.480 --> 00:57:13.119 Frank R. Harrison: Please continue to support our Youtube channel as Roddy did. Take a lesson from him. And again, Sam, make sure you get Jeff on your show, and Jeff will definitely talk, probably in the next few days about our next show together, and thank you all for watching this episode of Frank about health. I will definitely see you all next week, and we're signing off now, so take care to all of you see you soon.

00:57:13.720 --> 00:57:14.450 Jeff Demitrack: No.

00:57:14.830 --> 00:57:19.389 Frank R. Harrison: bye, bye.

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