Philanthropy in Phocus

Friday, January 20, 2023
Facebook Live Video from 2023/01/20- Caring for the caregiver who is the "invisible patient"

Facebook Live Video from 2023/01/20- Caring for the caregiver who is the "invisible patient"


2023/01/20- Caring for the caregiver who is the "invisible patient"

[NEW EPISODE] Caring for the caregiver who is the "invisible patient"

Fridays 10:00am - 11:00am (EDT)


LIAD is a resource for families dealing with Alzheimer's and other forms of dementia. Located in Westbury and accessible from most highways. Our hands-on programs and services are not only for the diagnosed individuals but for the caregivers. We want to make sure that anyone that needs help in navigating this journey can come to our professionals for help and support. 


About Tori: Tori has been the Executive Director of the Long Island Alzheimer’s and Dementia (LIAD) Center since 2015; however, her history with the organization goes back to 2003, when she began as a Social Worker with the organization then called the Long Island Alzheimer’s Foundation (LIAF).

It is under Tori’s leadership that LIAF became the LIAD Center, representing the organization’s continuing evolution to meet the changing needs of the ever-increasing population of those on Long Island who are affected by Alzheimer’s disease and dementia. Tori is a zealous advocate for LIAD Center, pushing the organization to step to the forefront of community and professional education about cognitive impairment.

About LIAD Center: We are passionate about what we do — it’s in our roots. Long Island Alzheimer's and Dementia Center was originally founded by five Long Island women in 1988. Our founders are like millions of other Americans impacted by Alzheimer’s — they had a parent or grandparent with Alzheimer’s disease and shared the frustration of not knowing where to turn for much-needed help. 

Out of this dire need, our founders decided to be their own solution, and the Long Island Alzheimer's and Dementia Center was started. Today, we’ve spent 30 years providing supportive community-based services to Alzheimer’s families in Long Island. 


Facebook: Long Island Alzheimer's and Dementia Center 

Instagram: liadcenter 

LinkedIn: Long Island Alzheimer's and Dementia Center and Tori Cohen 

Tune in for this sensible conversation at

Show Notes

Segment 1

Segment 2

Segment 3

Segment 4


00:00:20.770 --> 00:00:30.880 Tommy D: It's your boy, Tommy D. Coming at you from the top of my house. I'm in the added cut through the static the whole thing. You'll hear that later on. That's the song

00:00:31.110 --> 00:00:43.990 Tommy D: every single week here on philanthropy and focus. I bring on another leader of a nonprofit organization. We do a couple of things here on the show, right? We have some fun. We have some laughs, that's for sure. We definitely have some serious talk at times, which I think we'll do a bit today.

00:00:44.220 --> 00:00:45.140 Tommy D: and

00:00:45.430 --> 00:00:47.630 Tommy D: I help these nonprofit leaders

00:00:47.820 --> 00:00:49.140 Tommy D: tell their story

00:00:49.560 --> 00:00:55.890 Tommy D: and amplify their message. And that's what it's all about for me. Nonprofits change our world

00:00:55.970 --> 00:00:59.779 Tommy D: each and every day they make the ultimate impact that

00:01:00.270 --> 00:01:23.000 Tommy D: really, you know the government's not taking care of these things. Oftentimes it's, you know it's business doesn't always take care of these things. So these issues need to be addressed by nonprofit organizations led by very special leaders, led by leaders. That's good. You never supposed to define a work with the word in it. I remember that from high school, but when you're an adult. You can sort of just do what you want to do. I guess so. Look, the thing I know about nonprofits.

00:01:23.450 --> 00:01:26.219 Tommy D: especially leadership, is that

00:01:26.230 --> 00:01:43.990 Tommy D: whenever I say, how great a leader is. They always say, Well, that's really about my team. It's not about me. It's about my team, and I expect i'll hear the same thing from Tory Cohen today who is my guest before I even do some background before I continue to R. Tory Cohen, executive director of Long Island, Alzheimer's and dementia. Good morning! What's going on?

00:01:44.730 --> 00:01:53.210 Tori Cohen, Executive Director of LIAD: Good morning, and thanks for having me on today. I'm excited to be able to share about our programs and services with our center in Westbury. So

00:01:53.570 --> 00:02:10.490 Tommy D: good morning, good morning to you. I'm excited. You know what. Look at. Every morning we get an opportunity to wake up in the sun is there is a good morning. That's what I believe, you know. Listen, we're guaranteed nothing. Gang. I'm, you know I've worked out a deal with the universe. I got 50 more years. That's I could.

00:02:10.500 --> 00:02:29.100 Tommy D: you know. Follow me on Instagram, and I'll teach you how to make deals with the universe, Tommy d dot n I see. Alright, so look we. We do a couple of things we talk about. We talk about the organization, we talk about the leader of the organization, the impact that the organization is making. And then ultimately we get to that what I call the crescendo of how do we help?

00:02:29.110 --> 00:02:41.530 Tommy D: How do we help the organization? How do you who are listening? Help the organization? How do you get involved? Or, if you need the services of the organization. How do you get access to the organization, the organization? So we will talk about all of that today

00:02:41.960 --> 00:02:47.579 Tommy D: before we get started. A couple of things I want to just point out to be mindful of.

00:02:47.680 --> 00:03:07.180 Tommy D: We do the show live on Facebook. It streams live on top, rated that in my singles on all the podcast platforms. So I say this: the next information may be dated whenever you find this. But right now, as I said here, January twentieth, 2,023, the New York City. Imagine awards. Applications have just become available nyc Imagine Awardscom.

00:03:07.630 --> 00:03:11.439 Tommy D: So if you're a nonprofit organization that serves

00:03:11.860 --> 00:03:27.680 Tommy D: people or animals, for that matter, if you do any work in nonprofit in the 5 boroughs in New York City, you should go to Nyc. Imagine And again, if you want more information about the Imagine awards, whether it be Long Islands which the event comes up this spring, the Eleventh Annual, Long Island. Imagine, Wards.

00:03:27.690 --> 00:03:38.919 Tommy D: you can always catch up with me on the Instagram of the say to me, you down in Yc. And my email, Tommy all right. All that stuff out of the way.

00:03:39.210 --> 00:03:56.269 Tommy D: Tory Cohen. Let me read a little bit of background on the organization I mean the organization's been around since 1,988 Long Island Alzheimer's and Dementia Center. The name has changed you'll share that with me. But since 1,988, the organization's been around, and, like many nonprofits, even

00:03:56.280 --> 00:04:11.460 Tommy D: even big big nonprofits started out as like 4 families who had maybe a special needs child, and they or they had a child with special needs, or they each had a child with some rare disease, and they formed the nonprofit and all of a sudden it's a giant nonprofit

00:04:11.720 --> 00:04:26.009 Tommy D: This particular organization started with 5 Long Island women, 1,988, and they were affected. Their families were were impacted by Alzheimer's. They had a parent or grandparent with the disease, and like of oftentimes when you're a resourceful person. It's like

00:04:26.290 --> 00:04:41.219 Tommy D: where the heck of the resources they're not there. Oh, well, then, I guess I got to create the resources. I got to turn this into the thing right? Right, Tory. I mean, that's kind of what happens. I see in the beginning before you even jump in. I just want to say 1 one last thing I mean you've been with your organization

00:04:41.260 --> 00:04:43.030 Tommy D: since 2,003.

00:04:43.480 --> 00:04:54.569 Tommy D: You have a background in Geriatrics is a senior social worker at Nyu Medical Center. I'm going to stop there. I'd rather you tell me your story than me read it off the the the page here. So

00:04:54.770 --> 00:05:00.809 Tommy D: let's just jump into it. I mean i'd love to hear sort of, you know. I I said this when we talked earlier in the week. You know how

00:05:00.970 --> 00:05:06.880 Tommy D: you know. Was there something that drew you specifically to nonprofit work, as I would say? And you said

00:05:07.050 --> 00:05:26.189 Tori Cohen, Executive Director of LIAD: not exactly that, but something drew you to this this particular work. You want to start with that if we could.

00:05:26.360 --> 00:05:35.399 Tori Cohen, Executive Director of LIAD: It started to just become more and more apparent. A lot of people coming in with one issue. And then, while they're in the hospital, someone saying, Well, you know what

00:05:35.510 --> 00:05:48.249 Tori Cohen, Executive Director of LIAD: is there, Memory, you know. Okay, is everything. Been okay? It's just now, you know they might be coming in for hip surgery. And then the next thing you know, they're noticing other symptoms that they might not have noticed before they came in for surgery.

00:05:48.260 --> 00:06:03.620 Tori Cohen, Executive Director of LIAD: A lot of that was going on, and it started to make me think you know what this disease this Alzheimer's is gonna start to become a, you know, a much bigger deal sooner than later, and that's what it ended up

00:06:03.630 --> 00:06:13.850 Tori Cohen, Executive Director of LIAD: drawing to this organization to me. I I was living in the city, and I moved out to Long Island. So yes, going into the city after a while, I was like, well.

00:06:14.090 --> 00:06:25.519 Tori Cohen, Executive Director of LIAD: you know, maybe maybe I could take a little break, but it was the disease that really brought me to this nonprofit back in 2,003, and

00:06:25.530 --> 00:06:34.289 Tori Cohen, Executive Director of LIAD: this organization, when it was started was really again just a resource center, people calling for information.

00:06:34.360 --> 00:06:52.150 Tori Cohen, Executive Director of LIAD: And then a little day program in the midst of it at the center in Port Washington. So it really was something that was really interested in. We knew, even at that moment there wasn't really a magical pill that was going to save anyone. So it was.

00:06:52.160 --> 00:06:56.509 Tori Cohen, Executive Director of LIAD: What can we do in the meantime, while we're waiting to get a cure?

00:06:56.650 --> 00:07:03.850 Tommy D: Yeah. So so let's go back for a second. So you said it started out as exclusively a resource center. What does that exactly mean?

00:07:04.300 --> 00:07:17.409 Tori Cohen, Executive Director of LIAD: That? So if someone was calling up and they wanted to know a Home Care Agency or a great neurologist in the area. We had a full book of tons of resources because we know

00:07:17.620 --> 00:07:33.610 Tori Cohen, Executive Director of LIAD: it's so overwhelming when someone is worried about something going on with themselves as a loved one neighbor, a colleague, whatever we were there to be able to say, Look, we have these 5 neurologists we know very well. Here's their numbers.

00:07:33.620 --> 00:07:47.269 Tori Cohen, Executive Director of LIAD: Once you give them a call instead of them trying to like, figure out who they can, you know. Go see any any type of doctors home care agencies, nursing homes, people that can come into the home and

00:07:47.520 --> 00:07:55.180 Tori Cohen, Executive Director of LIAD: clean their teeth like anything that you can imagine we had in these books, which is something.

00:07:55.190 --> 00:08:11.640 Tori Cohen, Executive Director of LIAD: Yes, we actually had like a big binder. It was is amazing, and always trying to update it, and always open to having people also come to the organization to talk about their company on whatever it was, or if it was a doctor. Look all just being there

00:08:12.130 --> 00:08:15.860 Tori Cohen, Executive Director of LIAD: to help people navigate this journey, which is really, you know what we want.

00:08:16.710 --> 00:08:24.439 Tommy D: I love that word. I I I use it a lot navigate, I mean, if somebody in my family just had something going on in the last week, and

00:08:24.620 --> 00:08:25.400 Tommy D: you know.

00:08:25.430 --> 00:08:34.499 Tommy D: running this on your own, you know, while all 2, you know, parents are working and trying to call doctors in this doctor now, doctor, and like

00:08:34.520 --> 00:08:45.049 Tommy D: it was just kind of difficult One Doctor had had one scenario, one talk to another scenario. The third doctor said, You gotta go do this, and it became it. It kind of got, you know. It gets frustrating

00:08:45.060 --> 00:08:59.630 Tommy D: A, and you know it. I know there's certainly a care advocates and people out in the field that are specifically in geriatric care. But also, you know, in with people with intellectual developmental disabilities, or really just any of us who

00:08:59.640 --> 00:09:15.850 Tommy D: who are not ourselves necessarily navigators. And i'll just kinda as a quick as quick as side. You know one of the things that drew me to the nonprofit space was focus that we have professionally at my agency. So we own a a firm called Vanguard Benefits.

00:09:15.860 --> 00:09:31.049 Tommy D: and a lot of the conversations we're getting in with our clients is around bringing them different resources, and you know whether it be, you know, benefits meaning. We do group health insurance and ancillary benefits for small businesses with focus on nonprofit, and you know it. It's like

00:09:31.280 --> 00:09:38.780 Tommy D: care, advocacy, care, coordination. These words, you know, we have to really consider

00:09:38.810 --> 00:09:45.599 Tommy D: as consumers, you know, in making our own decisions and figuring things out, and being a

00:09:45.620 --> 00:10:05.120 Tori Cohen, Executive Director of LIAD: you know, an educated consumer versus just. I got the benefits. I got the card. I'll just go to the place, and that's it. You know we have to make our own decisions, and that being said not the easiest thing to do, I see a smile in a little bit. What do you what you got on that one? Yeah, because I I think that that is one of the most important things like you're talking about benefits. It could be

00:10:05.130 --> 00:10:23.739 Tori Cohen, Executive Director of LIAD: someone in a doctor's office with their loved one. Even the caregiver, like we say, if it's a spouse or an adult child, which we say the sandwich generation. There is so much information to be had, and there is only so much you could be taking in when you're, you know, in a sense, sitting there worrying about

00:10:23.750 --> 00:10:30.249 Tori Cohen, Executive Director of LIAD: your loved one that is possibly affected, and wherever you could be I always say for us.

00:10:30.590 --> 00:10:32.219 Tori Cohen, Executive Director of LIAD: we can at least say

00:10:32.310 --> 00:10:44.989 Tori Cohen, Executive Director of LIAD: to the caregiver when you were in the doctor's office. Did you make sure you told him what happened last week about this or that? And and you know it happened just the other day here that we had

00:10:45.210 --> 00:10:56.169 Tori Cohen, Executive Director of LIAD: a participant. We call them participants at our Day care program, which I know we'll get into our programs. But he was having a really difficult time. He said. He's a younger person that has Alzheimer's, and

00:10:56.280 --> 00:11:01.790 Tori Cohen, Executive Director of LIAD: it was very hard to manage him here, and it was hard for him to be managed at home. And one thing it

00:11:01.860 --> 00:11:02.830 Tori Cohen, Executive Director of LIAD: we ended up

00:11:02.920 --> 00:11:08.090 Tori Cohen, Executive Director of LIAD: happening after we had a a consultation with the wife, and really checking in.

00:11:08.710 --> 00:11:14.950 Tori Cohen, Executive Director of LIAD: I don't think that she was giving the full story to the doctor. I don't think the doctor would look. Everyone's rushing, doing things quick.

00:11:15.890 --> 00:11:27.839 Tori Cohen, Executive Director of LIAD: It ends up to be that she wasn't able to have given him enough information that he went back to the doctor was put on a a different men's to see if this is going to help with behaviors Also.

00:11:28.000 --> 00:11:29.690 Tori Cohen, Executive Director of LIAD: just feeling like

00:11:29.890 --> 00:11:40.629 Tori Cohen, Executive Director of LIAD: we're here to point out these things. These are the things that are also happening here to his wife. Are these the things that are happening at home and redirecting, and really trying to guide them? Because

00:11:40.740 --> 00:11:57.350 Tori Cohen, Executive Director of LIAD: we can't really expect as much as we educate families in the community about this, it's still what it's happening to your own self. It it's hard to like. Look past that like you say it's more Sometimes you're like Well, he always did that, or she always did that, and and you know I didn't think that was a big deal, but

00:11:57.420 --> 00:12:09.670 Tori Cohen, Executive Director of LIAD: we're here to be able to help them. Well, this seems normal. This doesn't seem normal. Here are the resources you need to have a good advocate if it's us or other people in the community that really do that and go to appointments as well.

00:12:09.790 --> 00:12:17.039 Tommy D: Yeah, I I All that I agree with, you know, plus plus. And and then i'd say like the thing is like.

00:12:17.710 --> 00:12:31.399 Tommy D: these are emotional times. This I mean, if this is someone, if if if you're. If someone is individually going through this, this is a challenge like your your life is now changed completely right different trajectory. And then again

00:12:31.410 --> 00:12:44.700 Tommy D: the spouse, or or adult, or maybe again, maybe not adult children. If you're telling me, young people, you know I I I want to ask the age of people that can get this. You know Alzheimer's when it can start if it's early onset, but

00:12:45.660 --> 00:12:52.160 Tommy D: you know it's a lot for us to be asking of these caregivers if they're going through it, you know they they're not

00:12:52.230 --> 00:13:10.869 Tommy D: separated from the situation like okay. Well, now, i'm a husband. But now i'm let me put on my caregiver hat. No, that's still my wife or my husband right? That's my spouse, or my or my parent. I'm in this thing right. What? I I guess i'm trying to say it's difficult for me to step out and just be Caregiver Guy, all of a sudden. You know what I mean.

00:13:11.120 --> 00:13:12.789 That's that's

00:13:13.300 --> 00:13:17.840 Tori Cohen, Executive Director of LIAD: that's why and and and look no one knows in their life when

00:13:17.850 --> 00:13:37.860 Tori Cohen, Executive Director of LIAD: something like this can happen, and everyone has the capabilities of being able to handle so much, you say. Even in families there could be, you know, one child or a few children, and it's whose role, and who is going to take care of. What if it's their parent? Take away if it's their spouse, and and that's what's always really intriguing to, because one might get mad at the other for not being able to handle something. Well, you know what

00:13:38.200 --> 00:13:54.430 Tori Cohen, Executive Director of LIAD: they might not be able to. They may be able to help with the financial stuff they be able to help with the doctors appointments. They've been able to help with the hands on care in the home. Everyone may need to take a certain role, or someone may just be able to step. Take a step back, and that's not what their capabilities are.

00:13:54.440 --> 00:14:14.170 Tommy D: Yeah, and and i'll tell you this just from my again. I love that you called out the sandwich generation, which is, I always get a kick out of the sandwich generation because I have a friend of mine who the Financial Adviser, my Buddy Jupicard. He's down in down in Florida, and he always talks about the sandwich generation. You know he. He does a lot of work in in for those of us who are in the sandwich generation, and I laugh because

00:14:14.180 --> 00:14:15.900 Tommy D: I just turned 45,

00:14:15.930 --> 00:14:34.970 Tommy D: and I think Drew just turned, or will this year turn 65, and we're both in the same in the sandwich generation. And the thing is, you don't get out of the sandwich generation until you are one of the pieces of bread, and you know what i'm saying Like it. It's like, I mean like. If if your parent, you know my mother was 21 when I was born.

00:14:34.980 --> 00:14:36.740 Tommy D: Okay. So

00:14:36.750 --> 00:14:58.080 Tommy D: you know, if if you know, she lives till till 90, you know what does that make me 79 or something like that? And i'm like i'm 79 and i'm a caregiver. But how many generations of care for you know what i'm saying. It's like. That's how long you know with with the longevity that we have a it which is a blessing. But it's also a situation where

00:14:58.090 --> 00:15:04.899 Tommy D: you know your your 80 year old child could take me. Maybe my math is off, but the point of the matter is

00:15:05.720 --> 00:15:15.819 Tommy D: so. Senior citizens are taking care of. They're seeing your parents is what I'm getting that, you know. So it's it's. Tell me about that. What do you think

00:15:15.840 --> 00:15:18.339 Tori Cohen, Executive Director of LIAD: we in the last, you know.

00:15:18.500 --> 00:15:25.930 Tori Cohen, Executive Director of LIAD: 10 years or so. We know that other diseases have that cures. So the fact is that people are living

00:15:25.970 --> 00:15:45.219 Tori Cohen, Executive Director of LIAD: longer, you think, and so it does set up a different dynamic of what we need to deal with, and, like you say it's like the 2 piece of bread. But we're we're trying to manage ourselves. We're trying to manage our individual families, and then we're trying to manage. You know, If it's, then our parents, and

00:15:45.270 --> 00:15:58.239 Tori Cohen, Executive Director of LIAD: that's why we need to have resources in place. Because how can you, if you're working, go to a job, be able to go to your job and then not be focused on what can be possibly not at home

00:15:58.250 --> 00:16:09.829 Tori Cohen, Executive Director of LIAD: and with this disease. So we are going to take a quick break, and i'm with you on that the only thing I point out real quick before we go break is we're going to talk about all programs and things. We come back. But the thing is to

00:16:09.840 --> 00:16:23.619 Tommy D: you know there's employers need to be mindful of what your employees might be going through, and this goes to the whole mental health conversation which may or may not get into today. But it just goes to the point of. We need to be mindful of our people, of our associates, because we

00:16:23.630 --> 00:16:36.980 Tommy D: people are going through stuff, and then there's and and then there's an opportunity to bring in advocacy organizations, you know, resource organizations like yours to the employer side, which I think right. I love that because I mean that I, because our business works.

00:16:36.990 --> 00:16:54.890 Tommy D: intend with Hr. Departments. I think there's a lot of cool stuff which you and I could talk about probably another time, or maybe today we'll see how it goes. All right. Let's just jump to a commercial because we're late for that. But that's part of the show. That's how we do it. Run through a quick commercial break. We'll come back. Let's dive in when we get back Toory into programs, impact some anecdotal stories. How's that sound?

00:16:55.220 --> 00:16:59.800 Tommy D: Alright, we're going to commercial your boy? Non-profit sector connector guy right? Back

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00:18:38.650 --> 00:18:43.779 You're listening to talk radio, Nyc: uplift educate in power.

00:18:48.460 --> 00:18:49.430 You

00:18:50.790 --> 00:18:51.950 you

00:18:57.350 --> 00:18:58.090 Okay.

00:18:58.150 --> 00:19:03.460 nonprofits

00:19:04.130 --> 00:19:06.269 all the

00:19:06.460 --> 00:19:08.970 to me in his

00:19:09.810 --> 00:19:17.279 Tommy D: every single Friday. I in fact, I had a Phiatic all the time, but every single Friday I had a pediatric specifically to do this show

00:19:17.420 --> 00:19:20.830 Tommy D: philanthropy in focus and really

00:19:21.090 --> 00:19:38.910 Tommy D: highlight the work that nonprofits are doing, because I believe that that's my mission. I believe that's my role. That's my job as nonprofit sector Connector. Yes, I did make that name up myself, but people call me it now, so that work. But as that nonprofit sector connector. You know it's my role to make the connections. In fact, I had a I.

00:19:38.920 --> 00:19:43.290 Tommy D: I had a friend of ours in the office. She does

00:19:43.460 --> 00:19:58.810 Tommy D: Medicare and individual health insurance, and I think, Tori, I I mentioned her, my friend Ruthlin. I'm going to connect you all. We we should have a meeting. We should have a coffee meeting, because I like to drink coffee. In fact, one of my sons always says if I meet somebody in the neighborhood like a new friend like a parent, just like somebody in the neighborhood, whatever

00:19:58.920 --> 00:20:14.960 Tommy D: it's like what you can do, Dad invited for a cup of coffee. It's gonna go Have a coffee. I don't. Probably you're right with that, you know. Learn to have coffee, and then you can have these meetings, too, so we will. We'll do that. That that particular son tries to drink my eyes Coffee, as I think about it. So look, so

00:20:15.500 --> 00:20:27.930 Tommy D: it's. It's about the power of the connections, as i'm saying so, that is my mission. So we're going to get ruthlessly connected with Tory, because I think there might be some things she could do to help out the organization. The organization is called Long Island, Alzheimer's and Dementia Center.

00:20:27.940 --> 00:20:50.109 Tommy D: and Tori is always on the front lines. I'm. Reading from my notes. She's a community professional education getting this out there all about cognitive impairment she's always sought after with regards to issues for memory loss. She's been interviewed in publications broadcast, such as Wbib here on Long Island, in New's Day, as well as Long Island businesses. And now, with your boy

00:20:50.160 --> 00:20:56.680 Tommy D: on philanthropy and focus. All right, Tori, talk to me about the the organization. We talk background in the first segment. There.

00:20:57.110 --> 00:21:08.469 Tommy D: let's talk about programs. Let's talk about you know, evolution talk about over 30 years has been some changes with the organization delivered you had mentioned the other day. Even just the logistic.

00:21:08.520 --> 00:21:22.680 Tommy D: logistical move from where you were physically the the to where it is now. I felt like that was a catalyst, and there was a story there. You wanted to tell me the other day, but I said, No, no, no, Tory don't tell me. No. Wait till Friday. Well, yeah. So

00:21:23.350 --> 00:21:40.519 Tori Cohen, Executive Director of LIAD: what you said in the beginning, when this organization was started in 1,988, we were there till 2,016. The issue that we had is we loved Port Washington. We love serving the community there, but we really were so

00:21:40.530 --> 00:21:55.100 Tori Cohen, Executive Director of LIAD: far away from the highway that in the way the organization was changing and evolving. We want it to be more accessible to other people in Long Island. Look, that's what you want your mission. You want to be able to serve as many people as you can. So

00:21:55.190 --> 00:22:24.850 Tori Cohen, Executive Director of LIAD: in discussions with board and community, and this and that, and also other community organizations that we want to partner with more. You weren't able to partner with a lot of people, because if they're talking about our resources, and then they're like you're coming off the highway, and you'll get there in 25 min. I I live up on the North Shore, Long Island, for those of you who are finding us who Don't know Long Island, you know I mean it. It like I'm. 5 miles north of the La, where I live, you know 4 and a half, 5 miles. It's a poor Washington, and knowing where you guys were, that's even more of a pain in the next.

00:22:24.860 --> 00:22:39.809 Tori Cohen, Executive Director of LIAD: you know. Like just to get up that way. Yeah. So what's very centrally located, you know, North and South Middle Little Road, right? Not NASA County, right? It makes a lot of sense. So it's. So. That was that was the decision. So when

00:22:40.520 --> 00:23:00.120 Tori Cohen, Executive Director of LIAD: we moved to Westbury in 2,017, you know, a lot of changes started to happen, and the fact is is that, as I said to you, we started as a resource center and a day program which was helping people in later stages.

00:23:00.130 --> 00:23:09.009 Tori Cohen, Executive Director of LIAD: I kind of want to just sort of give you the evolution of what happened at, you know, with our organization, and you know where we are today, because

00:23:09.040 --> 00:23:16.040 Tori Cohen, Executive Director of LIAD: the organization was called the Long Island Alzheimer's foundation, and that's how it was started with the 5 women.

00:23:16.270 --> 00:23:18.090 Tori Cohen, Executive Director of LIAD: What happened was that

00:23:18.470 --> 00:23:36.740 Tori Cohen, Executive Director of LIAD: people thought we were an organization that gave out money they weren't understanding exactly, and there was a reasoning behind that, because they wanted to be able to do what they were doing in important other places, and they thought they were going to be able to be giving money out. But that's

00:23:36.750 --> 00:23:40.470 Tori Cohen, Executive Director of LIAD: not how it all ended up coming down. So

00:23:40.570 --> 00:23:43.000 Tori Cohen, Executive Director of LIAD: in the midst of

00:23:43.290 --> 00:23:52.649 Tori Cohen, Executive Director of LIAD: our move. One of the things that was super important to me is that we're making this move, and we really want to make ourselves known. People really do not know about us at all.

00:23:52.830 --> 00:23:55.299 Tori Cohen, Executive Director of LIAD: For a small grassroots

00:23:55.820 --> 00:24:03.790 Tori Cohen, Executive Director of LIAD: nonprofit organization not tied to a national organization, all funds ready to come to our center.

00:24:03.830 --> 00:24:09.290 Tori Cohen, Executive Director of LIAD: We're different because we have hands on programs and services. Everything we do is hands on

00:24:09.650 --> 00:24:21.149 Tori Cohen, Executive Director of LIAD: also. What makes us unique is that we're not only serving the people that are diagnosed. We're we're serving their caregivers, which obviously is super important, because you can't have

00:24:21.470 --> 00:24:37.340 Tommy D: just someone who's diagnosed without taking care of their caregiver. If you don't have the caregiver around, then who is taking care of the diagnosed? So let me throw up the 1 s after, because I had a friend of mine, Elisa, who was on the show a couple of months back from Nancy's house, and i'm looking for it real quick, so I want to make sure

00:24:37.350 --> 00:24:51.289 Tommy D: her name is escaping me right now at least his last name. But I want to make sure I call it out, because the organization, what what the show was about was about taking care of caregivers where we talked about self. Care

00:24:51.310 --> 00:25:04.620 Tommy D: is not selfish, and I think Elisa Lewin le wi and website is Nancy's Dash House Org, but i'll share it on Facebook to Nancy's Dash House Org, and at least his entire

00:25:04.630 --> 00:25:30.019 Tommy D: organization. She has an incredible story. It's somewhere in the archives of philanthropy and everybody. But it's all about that. We need to look out for ourselves when we are caregivers, Tory right Sandwich generation again, and we need to look out for other people who are giving care. And again, I think i'm creating something in my head because it goes back to my point about Hr. Departments again, that they need to be aware that many of us end up in this caregiver role, whether it be

00:25:30.030 --> 00:25:48.790 Tommy D: full time caregiving, or, you know, just the 6 spouse or somebody who's dealing with something, you know, long term or something that's more short term, and that becomes a big responsibility for us. So so I thank you for realizing as an organization, you know, and and not realizing the highlighting that that focus on the caregiver as well.

00:25:48.950 --> 00:25:57.870 Tori Cohen, Executive Director of LIAD: Yeah, that's something like. Look that we we had wanted to do, and we we were open to doing. We we sent you like you say organizations.

00:25:58.680 --> 00:26:13.069 Tori Cohen, Executive Director of LIAD: Other businesses need to know if they have some really good employees to that. They're really wanting to take care of. And yet they're not understanding the dynamics. If this person starts to call out, or they're late like to really understand what's going on with their

00:26:13.270 --> 00:26:32.809 Tori Cohen, Executive Director of LIAD: employees. So that's something that we you know, let in a sense we would love to help with in the future. But so the fact is is that you know people in the end. When I said. You know, making this organization what makes us unique. The other part of it, too, is once that first phone call is made to our center.

00:26:33.060 --> 00:26:35.019 Tori Cohen, Executive Director of LIAD: We want to be able to be with that

00:26:35.040 --> 00:26:37.209 Tori Cohen, Executive Director of LIAD: person family, whoever it is.

00:26:37.300 --> 00:26:39.409 Tori Cohen, Executive Director of LIAD: through the an entire journey.

00:26:39.460 --> 00:26:51.220 Tori Cohen, Executive Director of LIAD: it might be from the early stages to the later stages. It might be that one call that they ask one question, and they don't use any of our services that's fine. They may call 15 times, but that's one thing that I want to highlight that

00:26:51.230 --> 00:27:05.469 Tori Cohen, Executive Director of LIAD: we're. We're here for a lot of different reasons. And then, as you call yourself the connector, I mean? Yes, then, if someone's needing other services with another organization, then we are gonna, you know, make those referral. So

00:27:05.760 --> 00:27:07.689 Tori Cohen, Executive Director of LIAD: I think the biggest thing.

00:27:07.960 --> 00:27:25.799 Tori Cohen, Executive Director of LIAD: even with this disease is still that it's digitized, and it's still hard to take that next step, and I feel like once people take that next step with us. They realize that we're like a family, and when they come into the center which you know, I will talk about with our programs. I feel like

00:27:25.840 --> 00:27:29.289 Tori Cohen, Executive Director of LIAD: there's a sense what people always say to me. I feel like it's very

00:27:29.410 --> 00:27:33.350 Tori Cohen, Executive Director of LIAD: welcoming and warm, and we're like a family.

00:27:33.490 --> 00:27:50.849 Tommy D: Yeah, so let me just quickly, cause we. We're going to go to a break. But I just want to call out some of this stuff we weren't going to really make a big definition of the disease, because I am not a doctor nor a scientist, but you know the overview. It says it's more than 3 million cases a year.

00:27:50.860 --> 00:27:56.100 Treatments can help manage Alzheimer's disease, but there is no known cure.

00:27:57.170 --> 00:28:13.890 Tommy D: Symptoms are memory, loss, misplacing items for getting the names and places of objects repeating themselves regularly, you know. In fact, somebody in my family who is who's up in years, my father just not not my father, but somebody. My father's family just

00:28:14.190 --> 00:28:32.760 Tommy D: he's going through some of this, but she's in her nineties, you know I I but the you know not to say that it's okay. You know that that is somebody in their nineties. But you know I I don't know if that's an alzheimer's thing or something else. But confusion, disorientation, yeah, a lot of things. And i'm just pulling this right off of the Internet. This is.

00:28:32.870 --> 00:28:43.319 Tori Cohen, Executive Director of LIAD: you know, do you want to comment on that toy before? Because I think this is where someone can be left with it's different to have all those symptoms you have. People in their nineties

00:28:43.330 --> 00:28:57.359 Tori Cohen, Executive Director of LIAD: could have some memory issues, but it's it's the behavior that goes along with the disease. So wha the famous thing is? Yes, you could forget where your car is in the parking lot. I've done it many, many times. We're all crazy busy, stressed out.

00:28:57.840 --> 00:29:00.039 Tori Cohen, Executive Director of LIAD: but it's when you get your car.

00:29:00.140 --> 00:29:18.159 Tori Cohen, Executive Director of LIAD: And now we say we don't have keys. So if you don't know how to start the car. You're forgetting. Why, you're even getting in the car. Is that next step on that next level? Yeah, I mean, listen. If somebody was laughing the other day, because I I don't know if I give my keys to a valet or something like that, and you got to kick out of the fact that I have an apple

00:29:18.170 --> 00:29:26.709 Tommy D: one of these apple things I mean, that's what it's called. They got pod like a I bare pod, and the airpod that's just go. I have that on my keys, because

00:29:26.770 --> 00:29:41.260 Tommy D: it's not every day that I lose my keys, but often it's more than once a day in the same tank which my keys. So I gotta go. I go to my beep that thing. Yeah, stack still and give me the air tag. Thank you. But I go beep my keys, please, you know, so I can find the

00:29:41.370 --> 00:29:59.730 Tommy D: all right. We will go. We will be right back. This is only at the being focused. Tory Cohen from Long Island, Alzheimer's and Dementia centers on the show. When we come back we have promised you this. We're going to dive into programs are going to dive in what it's like at the center. What kind of staffers you have, what their roles are. Things like that this is philanthropy, and folks will be right back.

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00:31:03.910 --> 00:31:27.900 everybody. It's Tommy, deed and nonprofit sector connected coming at you from my attic each week here on talk radio that Nyc: I hosted program. But Atlanta made focus. Nonprofits impact us each and every day, and it's my focus to help them amplify their message and tell their story. Listen. Each week at 10 am. Eastern stand in time until 11 am. Is from standard time. Right here on talk radio, Dot: Nyc.

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00:31:40.000 --> 00:31:40.960 The

00:31:45.510 --> 00:31:48.660 nonprofits

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00:31:53.830 --> 00:31:56.329 Tommy in his.

00:31:57.040 --> 00:31:58.550 We are back

00:31:59.970 --> 00:32:02.770 Tommy D: today's guess is Tory Cohen and I'm Tommy D.

00:32:03.100 --> 00:32:13.169 Tommy D: All right. Look the organization called Long Island Alzheimer's and Dementia Center. So what goes on at the sensory Cohen, what does it feel like? How many employees are there? What are these employees doing? Tell me about that?

00:32:13.480 --> 00:32:20.459 Tori Cohen, Executive Director of LIAD: So our center we have around 28 employees. Half of them are

00:32:20.500 --> 00:32:32.709 Tori Cohen, Executive Director of LIAD: part time, and most of the employees that are working in the center are working in our day program, and I think you mentioned it at the way beginning of the show. If it wasn't for my staff.

00:32:32.720 --> 00:32:51.509 Tori Cohen, Executive Director of LIAD: we would not be the center that we are. It's the care, the kindness, the patients that people have here which makes it like comfortable space for the individual to come in and their family. And you know, just before I jump into, say, these programs. It's one of my staff the other day we have.

00:32:51.520 --> 00:32:57.209 Tori Cohen, Executive Director of LIAD: We have a bus which i'll get into. We have buses that pick people up for our day program here

00:32:57.550 --> 00:33:02.570 Tori Cohen, Executive Director of LIAD: yesterday, when it was pouring rain, and I was coming into the center

00:33:03.160 --> 00:33:10.370 Tori Cohen, Executive Director of LIAD: right after program began, One of the caregivers was dropping their love one off, and I watched my bus driver

00:33:10.520 --> 00:33:20.519 Tori Cohen, Executive Director of LIAD: for around 15 min. Go to the car where the person who at Alzheimer's is trying to get out, and if I could tell you, is probably like a 20 min process in the pouring rain

00:33:20.700 --> 00:33:32.470 Tori Cohen, Executive Director of LIAD: and the patience, the the the walking, you know, slow, slow walking even into the door. You know it was. It's just something that I you you you can't

00:33:32.960 --> 00:33:47.080 Tori Cohen, Executive Director of LIAD: ha you! You just have to have people that are like that that are your workers, your you certain people have that make up, and certain people don't, which is why, you know, if certain people aren't able to stay there's from like a lot of reasons at this organization, but it's it's

00:33:47.420 --> 00:33:57.270 Tori Cohen, Executive Director of LIAD: so unreal the care that people take, and the kindness, and you know I made sure, I said to this bus, driver, I I just need you to know like it was that was just

00:33:57.410 --> 00:33:59.090 Tori Cohen, Executive Director of LIAD: so unbelievable. And he said.

00:33:59.360 --> 00:34:12.419 Tori Cohen, Executive Director of LIAD: That's what we all need to do. That's what we do, I we got a pause right there. I don't know if you want to shout that person out by name. But whoever you are, is it Mr. Bus Driver, or Mrs. Bush Bus Driver Museum is Tony about battle, Lucco.

00:34:12.429 --> 00:34:30.459 Tommy D: Tony Tony Bataluco, Tommy day how you doing. Listen. But, Tony, I got to give you a shout out, because you know, and to to Tory's Point These are the folks that work in the nonprofit sector. These are selfless people. They're servant leaders. They're there. Let W. Unfortunately, in this industry in this sector people are not making

00:34:30.469 --> 00:34:51.819 Tommy D: what you can make in other jobs. That's I. I say that unfortunately, because my point of this is that needs to change. We can't change it this morning, but that needs to be changed. That's a different discussion. My point of it is, people don't go into the nonprofit sector to get rich people going in a nonprofit sector because they want to make an impact. They want to make a change, and oftentimes back to vanguard benefits. Very often in these conversations

00:34:51.909 --> 00:35:09.309 Tommy D: with non-profits that find want to find ways to do whatever they can for their staffers. And I don't know if I misread what you said there, Tory, but it's a you know your point about like, you know. Sometimes people leave, and people leave organizations, and you know, and you lose these incredibly special people that

00:35:09.320 --> 00:35:17.799 Tommy D: the sector should not be losing. You know. Organization should not be losing these people. The people want to be there, but at the same time, especially here, where we live.

00:35:17.810 --> 00:35:39.919 Tori Cohen, Executive Director of LIAD: People need to make you know the wage and and have an income that they can survive. We don't have to get into that topic now. But I just know that is something that is certainly important to our Sector Tony. Thanks for going above and beyond, and what you do, and and all the other 27 people on the staff are doing that to I appreciate it. Yeah. So the the day program that we have here is called the social model day program. It runs sixties a week.

00:35:39.930 --> 00:35:48.269 Tori Cohen, Executive Director of LIAD: which they come from 10 to 2. They include art, therapy, PET therapy workings, trivia

00:35:48.290 --> 00:36:00.660 Tori Cohen, Executive Director of LIAD: art. Every day we have live entertainment. People get lunches every day of the week. They can choose from 2 different types of food. Obviously it all depends on the person's.

00:36:00.670 --> 00:36:26.899 Tori Cohen, Executive Director of LIAD: If you have other medical issues and allergies and things like that. It's all looked at the food you bring it in, or it's. We bring in food from a restaurant that's down the street that's vetted with the NASA County office of the Aging. So everything sort of set up in a diet, you know, diet way of not like, not a lot of salt, and in the right amount of calories. So people get a lunch

00:36:26.920 --> 00:36:32.009 Tori Cohen, Executive Director of LIAD: every day, and we get live entertainment every day. But I just want to stress that

00:36:32.120 --> 00:36:39.540 Tori Cohen, Executive Director of LIAD: we're saying people get live entertainment. This is where funding comes in. We get support for that. We we we can't afford as an organization to just

00:36:39.550 --> 00:37:08.849 Tori Cohen, Executive Director of LIAD: have this type of entertainment. But we're trying to do what we can to make this as stimulating as it could be for people that come in with this diagnosis. So people love it. It's it's people if they need more time after our program. If it's someone that's us in the Sandwich generation working. We can keep people after hours, too. It just depends on what they need. We're small enough to be able to accommodate everybody and tailor things to their needs. How many participants do you get each week or each day

00:37:10.000 --> 00:37:18.580 Tori Cohen, Executive Director of LIAD: we're we're hitting around 25 to 30 each day, just with our day program, and you have to have a certain amount of staff

00:37:18.640 --> 00:37:26.830 Tori Cohen, Executive Director of LIAD: in each room in with New York State guidelines and and making sure that that, like you say, the ratios are all okay?

00:37:27.010 --> 00:37:45.659 Tori Cohen, Executive Director of LIAD: Are they? Are those individuals? Did they pay some? What what do they pay? Do they not pay? How how does that work? How does the organization? Well, we get funding for NASA County? So there's individuals that don't pay. There are certain people that to pay there's certain people that have

00:37:46.160 --> 00:38:09.259 Tori Cohen, Executive Director of LIAD: private, long-term care insurance that pays for their needs, and a few people that are at Some manage long-term care contracts so it's just a variety. We try not to turn people away, and that's why we're at least trying to get grants and a lot of hardship funding because we have 56,000 people in long dialing leading health, and you know, like, I say, we we know that this type of program is very

00:38:09.270 --> 00:38:10.850 Tori Cohen, Executive Director of LIAD: beneficial. It doesn't.

00:38:11.010 --> 00:38:14.340 Tori Cohen, Executive Director of LIAD: Sure the disease. But we certainly know

00:38:14.440 --> 00:38:21.950 Tori Cohen, Executive Director of LIAD: socialization is a huge part, and and so people are able to get to our program. We do have transportation.

00:38:21.970 --> 00:38:25.830 Tori Cohen, Executive Director of LIAD: We have 2 buses so people can be picked up.

00:38:25.890 --> 00:38:36.929 Tori Cohen, Executive Director of LIAD: I are bus drivers who are dementia trained and a staff member, and they can get on the bus and come and then get a ride home. So on the other side, when I say it's for the caregivers

00:38:37.060 --> 00:38:51.150 Tori Cohen, Executive Director of LIAD: just as much as the individuals getting what they can from our program, the caregivers getting that relief that any hours it's like a lifetime for them. It's. It reminds me a lot of of organizations that do work in the, in the

00:38:51.310 --> 00:39:01.049 Tommy D: what we used to refer to, although sometimes the special needs, community or the intellectual and developmental disabled community, because, you know, the parent of the caregiver in that time is often

00:39:01.310 --> 00:39:11.299 Tommy D: super overwhelmed because of the work they're doing, depending on the needs of the of the individual. So I I want to just couple of things I want to point out first of all, art therapy.

00:39:11.310 --> 00:39:30.499 Tommy D: Want to talk about it. Maybe we'll talk about today, but you and I, because want to get you hooked up with the spirit of Huntington Art Center, where i'm a board member. They do great work, and they can come on site and do some things their nonprofit organization. I want to hear about this PET therapy thing, because I also sit on the Board of Horse ability. And now have you ever had horses out there?

00:39:30.980 --> 00:39:34.379 Tori Cohen, Executive Director of LIAD: No, we had wanted to, and I just met.

00:39:34.550 --> 00:39:50.460 Tori Cohen, Executive Director of LIAD: I met the I got her. I met her at a lunch, but it was very brief, because she had to run out. Oh, no, we talked about this. Okay, so we you at the the NASA Bar lunch. Why did you leave it, Linda?

00:39:50.700 --> 00:40:00.470 Tommy D: Eighty's, my buddy? She's my friend. She's actually the first ever guest on philanthropy and focus way back in in January of 2,021

00:40:00.480 --> 00:40:15.389 Tommy D: January eighth, 2,021 was when Katie Mcgowan came on the show, but I sit on the board there, and they bring these minis out, these these 2 little me and one of them showed up on on philanthropy and focus one time. That's a whole, not they. But I would love to get involved with bringing out the horses, bringing out the minis.

00:40:15.400 --> 00:40:32.060 Tori Cohen, Executive Director of LIAD: and I i'm going to just say, I know horseability can make it happen. Can Can we make it happen on your side? Oh, I I absolutely. I mean what I was just gonna say before is that we were in touch. And then Covid happened. And then, you know, that was like they took away a bunch of years, and it was like we just needed to come back

00:40:32.100 --> 00:40:51.890 Tommy D: to the center and get things started slowly. But it was just like that. I mean. Look here's the connection in small world that we i'm going to make it happen. We're going to make it. We're being recorded. Everybody hold me to it. We're bringing Katie. If you listen, and i'll text you in a little while. But we got it out there and again the

00:40:51.900 --> 00:40:52.939 Tommy D: You're in Westbury.

00:40:53.620 --> 00:41:23.599 Tommy D: where horse ability is on the campus of Sunni, old Westbury, my arm a monitor. So this is an easy thing. This is like I might go get the voices. Now relax how we did so don't get the horses now, but like this is the kind of stuff we can make happen is certainly spirit of Huntington Art Center. So we, I think we're going to break in a couple. Not just yet. But I want to just talk about when we what do you have? A development person on your team? Or is that really role meaning for those of you who are not familiar with nonprofit? When I say development, the person who goes out and gets the grant

00:41:23.610 --> 00:41:53.569 Tori Cohen, Executive Director of LIAD: wakes the sponsorships, makes the relationships. Is that really in in your world? Or do you have somebody that does that? I was gonna say Yes, and I do, though, after I want it, because our day programs our biggest program. But we definitely have other programs that I want to make sure that I go back to programs and we'll talk about development when we come back. I'll I'll do a quick thing. So we have the day program. We have an in all rest. The program, which is a worker, goes to the home to provide relief to the individual as Alzheimer's and the caregiver can go out for 2 h. That's that's a really really special.

00:41:53.580 --> 00:41:59.529 Tori Cohen, Executive Director of LIAD: special, unique program that people love. And we serve people in NASA County

00:41:59.810 --> 00:42:19.769 Tori Cohen, Executive Director of LIAD: on the other side of it or the caregivers. We have support groups for spouses, adult children. The bereaved that's something that's super important run by our licensed social workers virtually and also in person something that happened. And like you say, it's gonna be hard, because there's so much to talk about

00:42:19.780 --> 00:42:39.450 Tori Cohen, Executive Director of LIAD: before Covid. Now. Covid mental health, mental health, mental health. Just because we're talking about Alzheimer's, we started counseling services here, run by a license social worker. So someone who needs more help and more care regardless of resources and stuff. We we have those services to be able to help people and have one on one session which is super important.

00:42:39.650 --> 00:42:50.499 Tori Cohen, Executive Director of LIAD: and and then people that just need more education, more caregiver trainings on many different topics. We can handle it. We have somebody else come in and talk about a certain subject

00:42:50.510 --> 00:43:07.909 Tori Cohen, Executive Director of LIAD: just about anything that a caregiver wants, which is why I like the idea that we're still small enough to be able to handle all these different things. So that's that a whole part of serving both sides of the coin, and really trying to make sure that we don't get. Now, by the care ever.

00:43:08.000 --> 00:43:24.939 Tommy D: Gosh! We talked about caregivers a lot already, so I don't want to keep delivering that point, but I think it's super important to just realize that that we're all going to be a caregiver, or you're going to be cared for one of the other. You know we're both at the same time, both at the same time, like literally like my friend, at least Lewin, who's founded that group, Nancy's house.

00:43:24.980 --> 00:43:33.289 Tommy D: She needed care, and she was caring for her father in law while she was going battling her own cancers and things like that. And it was just like, you know you. You know you have to.

00:43:33.300 --> 00:43:57.100 Tommy D: There's a lot takes out a lot, you know. It's a it's a bit dangerous, being a human being, you know. You got a lot of stuff going on. So all right. When we go to break which we're going to do in a sec. I want to share. I'll share the website. I'll kind of point out some of the programs. So for those of you who are watching on Facebook, you'll get to see it. But if you're not watching on Facebook, and you're just listening to us. You can go to Li that's the right website, right Li dimension.

00:43:57.150 --> 00:44:11.990 Tommy D: e m, e, n T. I l I All right. Let's go to quick break, Tory when we come back. What we'll do is, you know I was asking you a little bit about development. Let's because I want that to roll into. What do you need? Events coming out of connections? All that sounds good.

00:44:12.040 --> 00:44:15.270 Tommy D: All right gang will be right back.

00:44:18.470 --> 00:44:23.490 Everybody. It's to me deed and nonprofit sector connector coming at you from my adding

00:44:23.500 --> 00:44:42.410 each week here on talk radio that Ny. Z. I hosted program Atlanta in Focuses nonprofits in contact us each and every day, and it's my focus to help them amplify their message and tell their story. Listen: Each week at 10 am. Eastern Stand in time until 11 am. Is from standard time. Right here on talk radio, Dot: Nyc.

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00:46:10.330 --> 00:46:12.620 to

00:46:12.780 --> 00:46:15.330 Tommy in his

00:46:16.280 --> 00:46:40.439 Tommy D: planned to pay and focus, and just like that we're almost out of time. All right. So the website again, is Long Island. Well, the organization is Long Island, Alzheimer's and dementia. The website is allied Dementia Org I was sharing on Facebook just some of the programs. Sorry if you didn't get to see everything, but the breaks are real quick, because we had to get back to business here. So check out the website yourself. Tons of programs, tons of resources, really quick, Tory Cohen, before we get into some kind of upcoming events and and connections.

00:46:41.090 --> 00:46:42.469 Tommy D: What?

00:46:42.490 --> 00:46:58.919 Tori Cohen, Executive Director of LIAD: How do they get in touch? Aside from the website phone number? What are they? Can you shadow at a Facebook or Insta whatever. Yeah, I mean that. So you the the website you had said. Our phone number is (516) 767-6856, and we're on.

00:46:59.150 --> 00:47:09.239 Tori Cohen, Executive Director of LIAD: We're on Instagram and Facebook. Facebook is the Long Island, Alzheimer's and dementia center on inside. If you get L. I. A z dementia.

00:47:09.850 --> 00:47:12.040 Tori Cohen, Executive Director of LIAD: the the fact is, I think.

00:47:12.290 --> 00:47:21.480 Tori Cohen, Executive Director of LIAD: Tommy, the way you were starting the last conversation before we went to break when you were saying like who you know what's going on. Who's your Development person? Who's

00:47:22.780 --> 00:47:33.800 Tori Cohen, Executive Director of LIAD: the the organization has gone through so many different positions and things like that, I mean, look as the executive director of the organization. That is a huge part of my job

00:47:33.910 --> 00:47:39.399 Tori Cohen, Executive Director of LIAD: talking, talking, meeting people networking, but really

00:47:39.920 --> 00:47:41.489 Tori Cohen, Executive Director of LIAD: a lot of my staff

00:47:41.890 --> 00:47:53.480 Tori Cohen, Executive Director of LIAD: part of this whole puzzle, because they're out there with. I always say to them they may be out there, and it's not even a work day on the weekend, being ambassadors for us, because everyone

00:47:53.540 --> 00:47:54.650 Tori Cohen, Executive Director of LIAD: you can meet

00:47:54.800 --> 00:48:03.900 Tori Cohen, Executive Director of LIAD: one out of 6 people. They are definitely going to have someone that has the disease. So it's really like again, a team effort, and but even with our team

00:48:04.040 --> 00:48:15.459 Tori Cohen, Executive Director of LIAD: we still need so much out we do. We need a lot of help, and there's ways that people can help us. You are just asking about social media stuff

00:48:15.610 --> 00:48:27.080 Tori Cohen, Executive Director of LIAD: if you connect with us and you share our messages on social media that's huge for us. People could see things and then call, you know, volunteer opportunities with

00:48:27.220 --> 00:48:39.900 Tori Cohen, Executive Director of LIAD: introductions to other people. There's a lot of third party fundraisers. We have 3 major signature events each year one coming up on May Fifth, which is a Here's the whole punch in.

00:48:40.440 --> 00:48:48.960 Tori Cohen, Executive Director of LIAD: We have on September eleventh, a golf outing, and on November fourteenth a Casino event, all 3 big events

00:48:48.990 --> 00:49:02.729 Tori Cohen, Executive Director of LIAD: bringing in money to the organization, so we can continue to be sustainable and do what we love doing. The other part is people can come in. The most important is to see the center. There are a lot of other opportunities

00:49:02.740 --> 00:49:10.950 Tori Cohen, Executive Director of LIAD: to be able to help if it's funding support groups or engagement events, parties. We love to have parties for the participants here.

00:49:11.330 --> 00:49:14.030 Tori Cohen, Executive Director of LIAD: other time volunteering at our events.

00:49:14.100 --> 00:49:18.750 Tori Cohen, Executive Director of LIAD: Then one of the more major things, and I think you are focusing a little on that is, businesses

00:49:19.010 --> 00:49:33.810 Tori Cohen, Executive Director of LIAD: really having some theater businesses behind us, and believing in our cause, a for their employees. And if some of these businesses have grants that we can apply to to run in some other revenue to our organization.

00:49:33.820 --> 00:49:44.999 Tommy D: Yeah, no, I get it. And and and thank you for doing it all, and thank you for your team for doing. I love how you say ambassadors. But I pulled up the website, the the

00:49:45.350 --> 00:49:51.079 Tommy D: and they Here's the whole lunch in the gal at the golf classic. Excuse me in the Casino night, so I

00:49:52.810 --> 00:49:53.819 Tommy D: the

00:49:54.050 --> 00:50:03.159 Tommy D: angle with businesses. I'm just gonna pretend like this is just you and me having a cup of coffee for a second. I'm like just networking, and there's not people listening, and we're not recording this

00:50:03.650 --> 00:50:14.659 Tommy D: like, what about like lunch, and learns where an employer who might have 50 or 75 employees or 12 employees doesn't matter where they can

00:50:14.820 --> 00:50:22.550 Tommy D: write a check to the organization, and the organization can come in and say, here's what we do. Here's the services we have.

00:50:22.560 --> 00:50:40.409 Tommy D: because you say one in 6. So that says to me, if there's a dozen people in the room, that's 2 out of 12, right? That are what is probably higher than that right? Because I was just growing up. But it's sure it feels like it's everybody right. So because if it isn't my one of my parents, it's my maybe it's my in law, or my uncle, or whatever right so.

00:50:40.420 --> 00:50:44.029 or my neighbor across the street. Who's like family, whatever that kind of thing you know.

00:50:44.480 --> 00:50:50.689 Tommy D: So what about that? Have you done that? Or should we, When should we start doing that? You and me

00:50:51.030 --> 00:51:00.590 Tori Cohen, Executive Director of LIAD: tomorrow? That's something that really is in like you talk about strategies and strategic planning and things you want, and just new initiatives. There it is.

00:51:00.600 --> 00:51:20.429 Tori Cohen, Executive Director of LIAD: I think, that's super important. It was at 1 point at one time, you know, just even thinking about it's like. Well, I sent a lot of information to a particular hospital system because they wanted to give their resources to their employees. I never wanted to talk, but like that was just a start, so I could start once and learn with you tomorrow. That's that's important.

00:51:20.440 --> 00:51:33.540 Tommy D: Yeah. So it's funny. I was on a call. So one of the founding part is my firm. LED Probes and I were on a call yesterday with another friend who's coming on this show in a couple of weeks, and Melinda Marie Nayak, from an organization called Dom Heart 21

00:51:33.650 --> 00:51:45.140 Tommy D: foundation. Sudden cardiac arrest is is what they're focused on. And tragically her son Dominic passed it 17 years old on the basketball court at tuning farming down. Yeah.

00:51:45.200 --> 00:51:57.489 Tommy D: And we were talking about, you know. Certainly the the more Hamlin situation on that Monday night football game that probably the whole world is seen by now, and and sounds like that young man is making a a great recovery, and that's a super

00:51:57.800 --> 00:52:06.069 Tommy D: something we're all grateful for. But we need to have these conversations about things that go on in the world. So LED and I were in a meeting yesterday, and talking about

00:52:06.500 --> 00:52:15.080 Tommy D: how, as an agency, vanguard benefits we can really bring resources like like Melinda's organization, like your organization to our clients.

00:52:15.090 --> 00:52:30.360 Tommy D: You know we have a few 100 businesses that we deal with, and as a as a as a give back in a and a sort of again. It's on brand, you know we call we. We just redid our brand. It's called vanguard benefits. It used to be called Vancouver Insurance Agency, but vanguard benefits you. Yu is our website.

00:52:30.560 --> 00:52:35.350 Tommy D: and it's totally on brand with what we're trying to do is is be totally

00:52:35.410 --> 00:52:54.730 Tommy D: connected to the nonprofit sector, but bringing different resources to our clients. This is like a no brainer for me like i'm not. I'm not going to get over crazy. And and there's people listening. But but I don't see a reason why we can't do a whole bunch of these bringing you in to meet with leaders of organizations. It's, in fact, it's my passion. It's a whole other angle of what I want to do. You know, when i'm old and great.

00:52:54.740 --> 00:53:09.190 Tommy D: but or maybe not that great. But it's it's something that's right in our wheelhouse, so i'll stop there anything else that you want to say, as far as connections might go. Are there specific businesses?

00:53:09.200 --> 00:53:28.970 Tommy D: I've seen your note in the chat. Yeah, we we we totally ran out of time, which is part of the show it's out. Here's what my commitment is to my listeners. I promise you that every week, as long as I do this show we will run out of time way before we'd run out of words, because I got plenty of words and sort of my guess, usually. So

00:53:28.980 --> 00:53:58.959 Tommy D: I know anything you want to shout out. Are there like organizations like hey? You know it'd be great if we could partner with fill in the blanks, nonprofit, or or even businesses, or you mentioned a you didn't? I thought it felt like you were. We kind of winking at each other. You mentioned a health system, and you didn't mention anybody by name, but like, if there were some like relationships like on the island that we might want to hook up with. Is there anybody like that not to hold you to it? But it may be something there, because I I said, I said, health system, because just you never know you don't want one.

00:53:58.970 --> 00:54:03.200 Tori Cohen, Executive Director of LIAD: I think we are still

00:54:03.290 --> 00:54:20.760 Tori Cohen, Executive Director of LIAD: somewhat in have our beginning connections with some of the major health systems, but it's always. If someone else still knows someone higher like we always say, here's a whole other topic again. You know. Emergency room visits worst thing for one of our participants.

00:54:21.660 --> 00:54:41.270 Tori Cohen, Executive Director of LIAD: All the new like this was something that we had talked about with one health system like before Covid like did did. Is all the newer doctors really aware of these dynamics of when someone brought in with Alzheimer's and then with their loved one, what that really means and what it takes. And it's just it's one of the hardest things that we always say. Please try to stay away from

00:54:41.280 --> 00:54:45.339 Tori Cohen, Executive Director of LIAD: the emergency room, if you can, for a lot of reasons, and also for the hospital. It's like

00:54:45.680 --> 00:55:09.199 Tori Cohen, Executive Director of LIAD: once some of those in the hospital. There's a lot of things that happen, but just education, educating, educating new doctors educating emt, and you know that's that's the whole other part of you come to Someone's house who's calling for an emergency, and how you approach someone with Alzheimer's in their family. Because you're thinking, let's say, if we had someone they called for help, and that

00:55:09.210 --> 00:55:20.639 Tori Cohen, Executive Director of LIAD: Alzheimer's person is aggressive. We know They don't need to be aggressive because they can't help it, and that's why they love one call. But someone might be a little bit even more aggressive with the person and scare them. I mean, there's so much to like.

00:55:20.760 --> 00:55:23.750 Tori Cohen, Executive Director of LIAD: Understand? It's it's there's a lot

00:55:23.920 --> 00:55:51.730 Tommy D: for me, and that's why I'm very still passionate. So we just got to make it happen. We just got to come to your friends and Ted. And look, let's be honest. I don't, probably. Well, we probably meet at some point. But Greg Lavigne was the catalyst John up to great living in my body over at Mercury, Llc. Greg without you making this connection without then then this show probably doesn't happen at least not today. It doesn't happen as fast. So I want you to meet my friend Amy Fleischer with harmony, health care. Okay, Amy Fleischer is the record development out there formerly with

00:55:51.920 --> 00:55:58.100 Tori Cohen, Executive Director of LIAD: Lish Long Island. Select health care.

00:55:58.140 --> 00:56:01.789 Tommy D: So if he's the bat she's my body. She.

00:56:01.850 --> 00:56:18.420 Tommy D: I I love you. I I was going to say something about Dave girls who, big day for all that big fulfillment I won't. I'm not going to barry you all right. So look, we will leave it there next week on the Show Venture House, which is one of my clients. They They they run a clubhouse setting for people living with mental illness.

00:56:18.430 --> 00:56:38.250 Tommy D: It's i'm. Reading off their website where community of mutual support that provides members with opportunities, gain skills, companies respect as co-workers, neighbors, friends, and citizens. I happen to be on there at Staten Island Campus couple of weeks back so excited to have Julia Douglas, the executive director on the show next week, Tory Cohen. This has been an absolute pleasure. Honestly.

00:56:38.260 --> 00:56:46.540 Tommy D: you're right. We have a lot more to talk about. We'll just have to do it like over several cups of coffee and bring it in the boardroom and make some things happen.

00:56:46.550 --> 00:57:01.389 Tori Cohen, Executive Director of LIAD: I appreciate you anything last words because we're late. So anything else you want to say? No, I just want to thank you for having me on the show to be able to talk about our organization, which is super important, an important resource for people to know on Long Island. You you know someone. You have somebody.

00:57:01.440 --> 00:57:18.999 Tommy D: Please send them our way, and we will take care of them.

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