Thursdays 5:00pm - 6:00pm (EDT)
WHAT WILL THE AUDIENCE LEARN?
This Epilepsy oriented show will enlighten listeners into seizure disorder due to Post-Traumatic Issues including Traumatic Brain Injury, Sleep Disorders and Other Co-morbidities.
The associated trauma and seizures are co-morbid therefore the listener will also learn the difference between those suffering from epilepsy and those suffering from seizures as a result of traumatic or mental health disorders.
EPISODE SUMMARY:
Jeffrey and Danielle return to discuss how Seizures can be the result of other traumatic disorders to the brain and nervous system. They discuss the differences and similarities in treatment and we have a special guest: Jose Dennis to discuss his experience at age 9 with a traumatic vehicle accident which led to his onset of seizures as a young adult.
https://www.instagram.com/stagesofepilepsy/
https://www.linkedin.com/in/jeffrey-demitrack-75453912/
https://www.youtube.com/@danielleswanson3631
https://www.facebook.com/joey.dennis.79
Tune in for this healthy conversation at TalkRadio.nyc or watch the Facebook Livestream by Clicking Here.
00:00:43.280 --> 00:01:02.910 Frank R Harrison: hey, everyone, and welcome to a new episode of Frank about health. If you recall. Last week I was recovering from a lessons learned episode that has its way into the archives of anyone's memory who saw it. But, most importantly, I had touched upon that the episodes I did not fully go into in discussion were those involving
00:01:02.910 --> 00:01:12.510 Frank R Harrison: both Danielle Swanson and Jeffrey demetrak, which were the epilepsy oriented programming. And that's because for the next 2 weeks we're going to have our monthly
00:01:12.610 --> 00:01:25.280 Frank R Harrison: episode of epilepsy and its comorbidity in this particular episode post-traumatic epilepsy. But next thursday we're going to have a wrap up with some and interesting announcements of where Frank about health is taking the whole
00:01:25.300 --> 00:01:37.160 Frank R Harrison: epilepsy disorder into a much more live event. Space going forward into the spring and summer. Now that all being said. we have already touched upon
00:01:37.200 --> 00:01:56.160 Frank R Harrison: epilepsy and its alternative treatments, we have talked about narcissism and its relationship with epilepsy, and how epilepsy are perfect targets for narcissistic abuse. And today we're going to talk about a type of epilepsy which more than likely is due to either traumatic brain injury.
00:01:56.160 --> 00:02:03.350 Frank R Harrison: or some other kind of traumatic issue or disorder that ended up triggering seizures later in life.
00:02:03.630 --> 00:02:16.140 Frank R Harrison: So that's something that we brought Jeff and Danny to discuss from their own experiences. as well as a surprised guest, that we're not sure when he's going to arrive. But
00:02:16.150 --> 00:02:25.870 Frank R Harrison: we'll also let him share his story and experience with post-traumatic epilepsy. Now that being said, I first must issue by disclaimer before
00:02:26.690 --> 00:02:39.440 Frank R Harrison: I reintroduce Danny and Jeff, and that is if you are an epileptic patient currently under medicinal treatment, or undergoing any other kinds of alternative treatments.
00:02:39.490 --> 00:02:56.620 Frank R Harrison: Just remember that any of the information that is shared on today's episode is not for you to be taken with advice or direction. It is meant to be information or food for thought for you to consult with your primary care, physician and or neurologist.
00:02:56.640 --> 00:03:06.050 Frank R Harrison: so that you can determine if what you learned today is useful and can help you in your current treatment. Protocol. Therefore the information today is not the views
00:03:06.100 --> 00:03:14.910 Frank R Harrison: of talk, radio and Nyc. Or Frank about health, or rather again, just information for conversation that we hope you'll learn a lot from today.
00:03:15.040 --> 00:03:31.020 Frank R Harrison: Okay, that all being, said, Danny and Jeff, welcome back to Frank about health and everyone just also be aware this is March is brain awareness, month or brain injury, awareness, month. And so we thought this would be a fitting episode
00:03:31.080 --> 00:03:40.400 Frank R Harrison: of an epilepsy oriented episode to kind of pay, a discussion and an understanding of how brain injuries can sometimes contribute to seizures.
00:03:40.420 --> 00:03:41.830 so
00:03:42.210 --> 00:03:44.960 Frank R Harrison: that all being said, Welcome back to both of you.
00:03:45.530 --> 00:03:46.830 Jeffrey Demitrack: Thank you, Frank.
00:03:46.960 --> 00:03:49.060 Jeffrey Demitrack: Yeah, welcome to you.
00:03:49.260 --> 00:04:01.310 Frank R Harrison: Okay. I do see here that I should qualify the definition of post traumatic epilepsy.
00:04:01.520 --> 00:04:06.050 Frank R Harrison: First of all, let's look at the what the what's the famous word nomenclature.
00:04:06.380 --> 00:04:13.510 Frank R Harrison: You know a person with post-traumatic epilepsy is not necessarily an epileptic.
00:04:13.670 --> 00:04:19.450 Frank R Harrison: Okay, how so? Well, according to the definitions, of what
00:04:19.589 --> 00:04:25.740 Frank R Harrison: post-traumatic epilepsy is from the medical professionals as well as individuals that suffer from it
00:04:25.810 --> 00:04:31.610 Frank R Harrison: is that it depends upon the type of head injury you may have sustained earlier in life.
00:04:31.800 --> 00:04:40.610 Frank R Harrison: Risk factors include. When a person has a brain contusion. an intra cerebral hematoma. or you are older than 65
00:04:40.750 --> 00:04:53.390 Frank R Harrison: typically people that are born with epilepsy or develop it naturally is usually in their puberty years. So if it happens later in life, one can assume that it is a post-traumatic result of some other issue.
00:04:54.180 --> 00:05:12.500 Frank R Harrison: You're more at risk if you're over 65, you know, because of of stroke or something like that correct? And of course God forbid. There's anything like a like brain tumors or anything requiring surgical intervention sometimes that could in its recovery process trigger seizure, disorder.
00:05:13.300 --> 00:05:32.460 Frank R Harrison: Okay seizures during the first week after traumatic brain injury are considered to be provoked by the head injury, and known as early post-traumatic epilepsy. A new active brain injury, such as head trauma is one of the main causes of epilepsy, which is about 20 to 30% of the population suffering from seizures
00:05:32.730 --> 00:05:35.860 Frank R Harrison: and d people with intractable epilepsy
00:05:35.980 --> 00:05:45.000 Frank R Harrison: and their risk of consistent head injuries during a seizure which is pretty much I know I have suffered from post-traumatic partial seizures due to having
00:05:45.030 --> 00:06:03.680 Frank R Harrison: a generalized seizure and banging my head repeatedly and creating a brain lesion, so I can identify with that. And at the same time the question one can ask is, does a person's seizures change over time because of the head injuries from their seizures? And I think, Jeff, you can speak to more of that.
00:06:03.680 --> 00:06:18.150 Frank R Harrison: So that's the general overview of post traumatic epilepsy versus overall epilepsy. But I think statistically, we are saying that the population of those suffering from seizures are 20% non epileptic patients Correct?
00:06:18.270 --> 00:06:31.650 Jeffrey Demitrack: Well, yeah, and and epilepsy has a no identifiable cause. In about half the people with the condition in the other half it may be traced to various factors like
00:06:31.650 --> 00:06:51.160 Jeffrey Demitrack: genetic influence, or a brain infection like encephalitis. Or now, Covid, of course, and when you're younger it might be a high fever, or that say feebrile seizures.
00:06:51.230 --> 00:06:55.600 Jeffrey Demitrack: And when you're a young child you might have heard of that term.
00:06:55.650 --> 00:07:02.840 Jeffrey Demitrack: and certain medications sometimes might be the cause of seizures.
00:07:02.900 --> 00:07:20.260 Jeffrey Demitrack: And when when I was doing some reading about the cause of on Tbi, because this is a brain injury, awareness month, and many people are spreading awareness because of their brain injuries this month. So
00:07:20.260 --> 00:07:31.670 Jeffrey Demitrack: the doctors many times have to rule out alcohol misuse, because, you know, because they they're drunk in this many times it will lead to a fall.
00:07:31.810 --> 00:07:35.170 Jeffrey Demitrack: and then the hence a head injury.
00:07:35.180 --> 00:07:46.750 Jeffrey Demitrack: And so epilepsy it's a condition where there is unusual electrical activity, and in the
00:07:46.770 --> 00:07:58.650 Jeffrey Demitrack: in the brain, cause it causes people to, I would say, you know, pass out, shake, or unusual behaviors, and we call this having a seizure
00:07:58.660 --> 00:08:11.440 Jeffrey Demitrack: and head injuries also put people at risk for things like concussions, dizziness, vertigo, migraines, headaches.
00:08:11.440 --> 00:08:19.270 Jeffrey Demitrack: People who are are at risk for head injuries are are people with intractable epilepsy, and
00:08:19.270 --> 00:08:39.450 Jeffrey Demitrack: people having seizures all the time, but they are also people that are are playing sports or risk takers like mountain climbers or deep sea divers. Or you know, people of that nature. A good percentage of epilepsy cases are people that have head injuries, and
00:08:39.450 --> 00:08:58.520 Jeffrey Demitrack: maybe people that are veterans. You know that have also had an injury because they they had it while they were doing their duty as a veteran, and it could be caused by scarring on the brain.
00:08:58.520 --> 00:09:06.120 Jeffrey Demitrack: and this may mean an individual begins to have start having epileptic seizures.
00:09:06.160 --> 00:09:15.300 Jeffrey Demitrack: so that that wasn't the case for me. Yeah, I started having it when I was a
00:09:15.300 --> 00:09:33.460 Jeffrey Demitrack: when I was a child, but I also had many other causes for my that, so it could not be traced to the brain injury as the direct cause or the the individual cause for my epilepsy. So
00:09:33.510 --> 00:09:34.450 Jeffrey Demitrack: Hmm.
00:09:34.700 --> 00:09:35.820 Frank R Harrison: Okay.
00:09:35.850 --> 00:09:44.540 Frank R Harrison: And so, Danny, what would you classify? And I mean, I know you raised your hand when we talked about unexplainable causes for your your history with epilepsy.
00:09:45.600 --> 00:09:48.250 Danielle: intractable
00:09:48.310 --> 00:09:52.940 Danielle: epilepsy, and you know basically the kind where they don't know why you have epilepsy, and
00:09:52.950 --> 00:10:02.430 Danielle: that is me. They tried to figure out, they thought, oh, maybe it's genetic, because I do have. I think it's a one of my grandmother's aunts had epilepsy. It's pretty severe, but
00:10:02.700 --> 00:10:12.550 Danielle: no, they figured out it wasn't that for me. I didn't I've never had any like brain trauma or injuries or anything. So it's not that they basically ruled everything out, and they're just like, yeah.
00:10:12.660 --> 00:10:20.480 Danielle: we don't know. So when he was talking about that kind of the kind that you can't figure out. Why it is. I was just like oh, that's me
00:10:21.020 --> 00:10:33.430 Frank R Harrison: all right. No, it's it. I I think I kind of like the umbrella between the 2 of you. I I developed it. My very first seizure was when I was 16. I was in a high school classroom.
00:10:33.430 --> 00:10:43.080 Frank R Harrison: studying all night long for a complicated calculus exam, and I had no sleep. Sleep, deprivation, trigger number one
00:10:43.150 --> 00:10:47.410 Frank R Harrison: at the same time. The stress of the test itself was trigger number 2,
00:10:47.530 --> 00:11:00.780 Frank R Harrison: and I had this ongoing sense. You know what they call those auras, but not just the visual ones. The ones, where you feel like a sense of nausea in your stomach, where you just feel like you, you have a gravitational pull
00:11:00.780 --> 00:11:08.100 Frank R Harrison: that's making you walk slower than normal, or you have what these these kind of out-of-body senses like? Am I really here.
00:11:08.260 --> 00:11:28.090 Frank R Harrison: you know, and then all of a sudden I remember the very moment the seizure occurred. I was looking at the blackboard. It was a history class, and we were looking at my God when I was 16. It was 1984, I believe. So it was the 1984 Presidential election between I I forget who was running at that time, but
00:11:28.090 --> 00:11:42.370 Frank R Harrison: well, Reagan was one of them. But the point of the matter is, the blackboard looked like it broke in half, and the next thing I had heard when I woke up in the emergency room was that I fell out of my chair.
00:11:42.390 --> 00:11:46.320 Frank R Harrison: People thought a dictionary had fallen, or a series of books.
00:11:46.380 --> 00:12:00.660 Frank R Harrison: and I just went into the convulsion and everything else. and I remember the day they diagnosed it, and again the 80 S. It was still considered a stigma to be known as an epileptic. So I remember when the when the I don't know if it was a nurse, or the or the doctor
00:12:01.410 --> 00:12:09.230 Frank R Harrison: that said, oh, epilepsy! And I go. Oh, no, not at all. No way not happening. I I was just. I was exhausted from no sleep. Blah blah blah!
00:12:09.390 --> 00:12:15.920 Frank R Harrison: I went through a whole denial period until 1,987, when, taking a bath
00:12:15.970 --> 00:12:27.340 Frank R Harrison: Christmas time, I almost drowned in my own bathtub, and that was when they said, you're an epileptic. You're taking Di lantern, or you would have been dead tonight, and I went. Okay, all right. But
00:12:27.350 --> 00:12:32.460 Frank R Harrison: we're now being told 2 min to break the bottom line is is that I had learned
00:12:32.470 --> 00:12:34.800 Frank R Harrison: earlier in my life that
00:12:35.230 --> 00:12:52.240 Frank R Harrison: I basically was destined to have it because after meeting a lot of different doctors, and finally landing with the one that I've been seeing since the nineties over at Nyu Langgo and comprehensive Epilepsy Center. He identified it as genetic epilepsy, genetic, grand Mall seizures.
00:12:52.280 --> 00:12:53.470 Frank R Harrison: And so
00:12:53.470 --> 00:13:19.700 Jeffrey Demitrack: it it's also a interesting that you mentioned nerve cells. What you mentioned nausea. There's a lot of nerve cells in your stomach, and a lot of people always say that it was due to something that they ate, or you know they might have had food poisoning, or they? There's gotta be a a relationship between the stomach and the the brain, and they. There is a lot, a lot of nerve cells, and a lot of of
00:13:19.700 --> 00:13:27.790 Jeffrey Demitrack: there. There's a a big connection between the epilepsy and the and the stomach. Yeah. So
00:13:27.920 --> 00:13:46.920 Frank R Harrison: right, because there's all the electrical communication that's also misfiring what throughout the entire Cns now central nervous system, All right, when we return we're going to get more of Danny's particular story in relation to post-traumatic epilepsy, especially in the area of Ptsd
00:13:46.920 --> 00:13:58.250 Frank R Harrison: Oriented issues that might be in the workplace, or even just from having gone through embarrassing experiences. So please stay tuned as we're talking about post-traumatic epilepsy on this episode of Frank about health one
00:13:58.290 --> 00:14:07.360 Frank R Harrison: on talk radio and Nyc on our Facebook Channel on our Youtube channel on our linkedin Channel and on Twitter. So please stay tuned.
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00:15:42.980 --> 00:15:43.900 Patient.
00:15:44.450 --> 00:15:45.570 www.TalkRadio.nyc: The
00:15:45.750 --> 00:15:51.280 you're listening to talk radio, nyc uplift, educate, and power
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00:16:19.950 --> 00:16:34.080 Frank R Harrison: welcome back. So in the first segment, we spoke about the difference between genetic epilepsy and post-traumatic epilepsy. And today's episode is devoted primarily to post-traumatic. But we are giving a general overview of what epilepsy is as
00:16:34.080 --> 00:16:42.660 Frank R Harrison: jeff had mentioned all the details, including the example of how the central nervous system within the stomach is connected to the brain activity, warning you that a seizure is coming
00:16:42.710 --> 00:16:50.350 Frank R Harrison: aside from the auras and the medications and other aspects of epilepsy. The one thing to realize is that when dealing with
00:16:50.910 --> 00:17:08.180 Frank R Harrison: typical epilepsy, the type that is diagnosed as epilepsy. It can happen at different stages in life. Typically, in the younger years there have been stories of well, not stories, diagnoses of Grandma petty. Mal. At the same time people saying juvenile myoclonic.
00:17:08.180 --> 00:17:17.520 Frank R Harrison: Lennox, gasto syndrome All of These are basic neurological terminology that I don't think either one of us are qualified as non-medical
00:17:17.530 --> 00:17:36.440 Frank R Harrison: practitioners to go into detail. So if you need information on that, I would recommend looking at the epilepsy foundation website, or even looking at just different information that is available on Wikipedia about the various types of epilepsy. So now, as we go into the post-traumatic type.
00:17:36.460 --> 00:17:42.540 Frank R Harrison: which is what we're going to devote the rest of the show to. I want Danielle to talk about her epilepsy
00:17:42.650 --> 00:17:58.530 Frank R Harrison: through the workplace because it's not typically a post-traumatic type, of event. But the workplace has a different culture, as we described on previous episodes that can have stress triggers sometimes beyond our control, and as such
00:17:58.560 --> 00:18:17.290 Frank R Harrison: influence, seizure, activity, even if the individual has been fully medicated, and is probably also resolved in most of the primal symptoms that they've had when they were first diagnosed. So, Danny, I just thought you'd start to share any one particular moment. You might recall
00:18:17.290 --> 00:18:20.090 Frank R Harrison: that people, the listeners and viewers could learn from.
00:18:20.460 --> 00:18:22.130 Danielle: Yeah, absolutely
00:18:22.220 --> 00:18:26.550 Danielle: thanks for the Intro. So yeah, talking about
00:18:26.580 --> 00:18:28.890 Danielle: kind of brain injuries, and all this
00:18:29.050 --> 00:18:41.560 Danielle: in regards to epilepsy, I am kind of just sitting here during the break, reflecting, and I think there's something to be said for anyone who has epilepsy that
00:18:41.840 --> 00:18:50.450 Danielle: seizures can happen anywhere, anytime kind of like you said. and there's 2 kind of main ones that are coming to my mind right now. So
00:18:51.970 --> 00:18:58.900 Danielle: you know, I would say probably age 22 and younger it wasn't really a big deal for me, but I do remember at one time I was working in a
00:18:58.980 --> 00:19:01.370 Danielle: a yoga studio, and.
00:19:01.390 --> 00:19:05.100 Danielle: oddly enough, it was a very like intensive.
00:19:07.750 --> 00:19:10.920 Danielle: I don't know high pressure financially, to get like
00:19:11.070 --> 00:19:21.800 Danielle: enough members and make enough money and all this, and that was very stressful for me. I'm not a super salesy person. But I do remember one time I'm. I'm going out doing what I wanted to do
00:19:22.020 --> 00:19:26.500 Danielle: for that, and i'm passing out flyers. Oh, come to the Yoga studio and
00:19:26.550 --> 00:19:27.450 Danielle: excuse me.
00:19:27.620 --> 00:19:28.820 Frank R Harrison: it's all right.
00:19:29.190 --> 00:19:42.860 Danielle: and I was passing by a whole food, so that's what I do remember, and I felt a seizure coming on. So I just sat next to the the outside edge of this whole foods, and it was in a city Cambridge. If you're familiar with it in Massachusetts.
00:19:42.990 --> 00:20:00.270 Danielle: There's a lot of people there's enough people. So I knew there's a lot of people. It's where Harvard is right. Right. I I expected like basically good behavior. Let me put just put it that way.
00:20:00.270 --> 00:20:05.380 But I sat down. I had the seizure, and I didn't go unconscious for this one, but
00:20:05.400 --> 00:20:19.400 Danielle: I saw people look down at me and kind of like screwed away like they thought I was on drugs or something. No one offered to help me. No one stopped to ask. Hey, are you okay? It was very like emotionally kind of shocking to me, because I
00:20:19.600 --> 00:20:22.840 Danielle: I guess I, in my in my mind expected something different.
00:20:23.080 --> 00:20:34.000 Danielle: And then there was another time. I did have a seizure at the top of a subway station, and I did go unconscious, so I have no idea whether there could have been a brain injury there or not, because
00:20:34.440 --> 00:20:47.590 Danielle: I was by myself. and that can happen to anyone anytime. There's a lot of who has epilepsy right you. Sometimes you have experiences, and maybe you do get a brain injury from falling or
00:20:47.630 --> 00:20:52.670 Danielle: some other way. I don't think I did from that particular incident.
00:20:52.890 --> 00:20:56.850 Danielle: but just those 2 to to give an example and then at work.
00:20:58.040 --> 00:20:59.530 Danielle: Besides the Yoga one.
00:20:59.740 --> 00:21:02.550 Danielle: I did once have a a
00:21:02.580 --> 00:21:04.180 Danielle: yeah seizure
00:21:04.760 --> 00:21:08.660 Danielle: while teaching ballroom dancing, and I kind of had to go in the back room.
00:21:10.610 --> 00:21:22.140 Danielle: No, I that's not. That's a lie. I wanted to go in the back room. I didn't have a chance to. It was coming on so fast. So I told my student because I was teaching someone at the time. Please go get get the guy at the desk
00:21:22.160 --> 00:21:22.930 Frank R Harrison: right.
00:21:23.530 --> 00:21:24.890 Danielle: you know. Safety
00:21:24.970 --> 00:21:31.700 Danielle: and the guy at the desk he was. He was a young kid, so he was. He was like trying to clear out the whole room.
00:21:31.770 --> 00:21:36.540 Danielle: Tell everyone to go away. I was fine. I just sat down.
00:21:36.660 --> 00:21:48.490 Danielle: but there was this kind of like stress, mostly from the people around me like worrying. And for me i'd rather just have everyone relax and stay calm, but
00:21:48.520 --> 00:22:05.350 Danielle: anywhere like I I work in a city. I I've always worked, I guess, in cities that are pretty high pressure in all my work. So it's right. There's always that stress, and that is for me the biggest trigger I don't know if I explained that well, and if that's the story you're looking for. But
00:22:05.350 --> 00:22:23.400 Frank R Harrison: Well, no! It it does give an insight into how that what an individual, already suffering from intractable epilepsy can actually become a patient with post-traumatic epilepsy depending upon the location of your seizure. I mean where you mentioned the subway example.
00:22:23.710 --> 00:22:29.550 Danielle: God forbid! You fell down the stairs during that seizure. Yeah, that was my first thought back. Up.
00:22:29.730 --> 00:22:33.000 Danielle: That's all I could do
00:22:33.190 --> 00:22:50.990 Frank R Harrison: right. I mean. I could tell you that how I can relate to that is my last full-blown seizure was in 2,005, and I had just come out of the subway station. Everything in the subway looked yellow. Everything from my own hands to the subway car to
00:22:51.100 --> 00:22:52.020 Frank R Harrison: the people.
00:22:52.040 --> 00:22:57.440 Frank R Harrison: and I had just got out right a block away or 2 blocks away in the Rockefeller Center area
00:22:57.670 --> 00:22:59.980 Frank R Harrison: where St. Patrick's cathedral was.
00:23:00.320 --> 00:23:16.920 Frank R Harrison: So I was running up the stairs towards St. Peters Cathedral, across the street, through on well, I mean, there was traffic light, so there was no oncoming traffic, but as soon as I made it to the steps I fell into the seizure because I knew it was happening.
00:23:17.160 --> 00:23:18.750 JOEY: and I hit my head.
00:23:18.910 --> 00:23:21.570 Frank R Harrison: I think it will. Actually, I hit my head in the back
00:23:21.780 --> 00:23:22.620 JOEY: where
00:23:22.710 --> 00:23:28.390 Frank R Harrison: it was bleeding, and I needed to get staple sutures or whatever they call them in the emergency room.
00:23:28.440 --> 00:23:39.340 Frank R Harrison: But it was very interesting, because I had all the signs and warnings, and, thanks to St. Patrick's Cathedral, I always considered that the moment of divine intervention I was able
00:23:39.410 --> 00:23:40.450 JOEY: to get
00:23:40.560 --> 00:23:46.060 Frank R Harrison: protected by the on. You know the tourists and the the workers that were going by
00:23:46.070 --> 00:23:56.220 JOEY: Get me into an ambulance, and then go to Bellevue Hospital. where I simply checked yourself out and got treated. But it did. Note is that since that day
00:23:56.510 --> 00:24:04.740 Frank R Harrison: I was getting a lot of forgetfulness Side effects. you know, probably because of whatever concussion or
00:24:05.790 --> 00:24:13.860 JOEY: I wouldn't call it a post-traumatic issue. But I would just simply say whatever my concussion was reacting to
00:24:13.970 --> 00:24:15.740 Frank R Harrison: stemmed from
00:24:15.920 --> 00:24:23.260 Frank R Harrison: you know, having an injury due to the fall, even though it was a full-blown attack. So that's how I related your subway story.
00:24:23.480 --> 00:24:31.490 Jeffrey Demitrack: you know, and and I see a statistic here. It says people with head trauma are 12 times more likely to have seizures. So.
00:24:32.440 --> 00:24:35.470 Frank R Harrison: Yes, yes, although it's ironic, though Jeff
00:24:35.560 --> 00:24:40.270 Frank R Harrison: is, those are the last seizure. That was the last full-blown seizure I ever had.
00:24:40.270 --> 00:25:08.240 Jeffrey Demitrack: the one that happened at St. Patches Cathedral. Well, it's very scary to have it in a subway, because so really you do not want to fall over the platform, so you don't know which way to go, and you you don't want to lay down a in a really nasty situation. You don't want to run out of the subway because you're you don't want to run upstairs. So I mean it's really it. It's like nowhere's no Man's Land.
00:25:08.470 --> 00:25:27.460 Danielle: Yeah, you guys remember that there was a story about that, I think probably 10 years ago now at least, where the guy had a seizure fell into the New York City subway train tracks, and the guy. Some other guy just jumped on top of him and made sure that the 2 of them were in the middle of the tracks, because the train. I do remember that story. It was amazing.
00:25:27.660 --> 00:25:37.670 Frank R Harrison: Yeah, a little bit of trivia is that that very person who saved that guy ended up dealer no deal, and they tried to give him a prize, even though he lost the game.
00:25:38.130 --> 00:25:57.790 Frank R Harrison: Oh, that's nice. I think it was a tribute show. Well, I don't think, dealer. No deal has been on the air for about 10 years now, but I had remembered they had that special episode with that. That it's Subway Savior. Let's just call him that for the purpose of the conversation, and he was the first of many, because now it became a regular event. So all this talk about
00:25:57.790 --> 00:25:59.860 Frank R Harrison: subways and epilepsy.
00:25:59.870 --> 00:26:16.140 Frank R Harrison: I vow never to take a subway again unless it's a real emergency, and when I do go I hold on to the the the pole, you know, looking to get out as soon as I can, even if i'm only going 2 stations away, you know. But I can tell you that that's how I got Covid, too.
00:26:16.360 --> 00:26:21.870 Frank R Harrison: I actually caught it from people in the subway on March 1120, 20,
00:26:22.060 --> 00:26:37.050 Frank R Harrison: When I ended up with the symptoms after 10 days of incubation. But the original Covid. Yeah, the original one that I swear I thought it was the King of Siam, or something. So the thing is is, I went through those delusional dreams. It was ironic that I didn't have any seizure activity.
00:26:37.150 --> 00:26:46.560 Frank R Harrison: But then I think we all discovered that you don't have to be an epileptic in order to get Covid, or vice versa. That was the one comorbidity that was never in question.
00:26:46.910 --> 00:27:02.780 Frank R Harrison: But either way. The thing is is that I do to this day also suffer from partial seizures due to a lesion. I got on my brain after repeatedly banging my head while visiting my godson in Miami, in 2,003, and that's why I take kepra to this day.
00:27:02.780 --> 00:27:07.620 Frank R Harrison: but I no longer take the laptop for the full-blown, because I haven't had one in 15 years.
00:27:07.820 --> 00:27:26.790 Frank R Harrison: So it's very interesting how the majority of cases of epilepsy are epilepsy cases. But the whole nature of post-traumatic epilepsy is something that I think we're going to learn more about in the next segment of Frank about health through our special guests that arrived. Mr. Jose Dennis.
00:27:26.820 --> 00:27:30.770 Frank R Harrison: who has a very interesting story that happened to him when he was 10 years old.
00:27:30.800 --> 00:27:34.690 Frank R Harrison: and that basically the seizures happened years later
00:27:34.770 --> 00:27:37.570 Frank R Harrison: went away and came back again.
00:27:37.620 --> 00:27:43.100 Frank R Harrison: So that whole story definitely has to be discussed in the next segment, because we're about to take a break.
00:27:43.120 --> 00:27:49.770 Frank R Harrison: So I want to thank you, Danny and Jeff for helping me outline that epilepsy is predominantly that
00:27:49.980 --> 00:27:52.830 Frank R Harrison: epilepsy but the post-traumatic type
00:27:53.070 --> 00:27:55.460 Frank R Harrison: are the things that we're learning more about
00:27:55.580 --> 00:28:08.830 Frank R Harrison: as we go along. It's only been labeled post-traumatic in the medical community over the last I think 5 years. you know. But the thing is is that when you now see it more common, like on those medical shows, like Gray's anatomy.
00:28:09.350 --> 00:28:15.980 Frank R Harrison: nobody is immune to having seizures. We want to get that straight, because we already know as we've talked about on our previous episodes.
00:28:16.520 --> 00:28:19.780 Frank R Harrison: Epilepsy is still a stigma, not as much as it used to be.
00:28:19.800 --> 00:28:49.000 Jeffrey Demitrack: but people should not be stigmatized just because they have seizure activity. The brain, after all, is a powerful computer running on electricity like the way computers do. And sometimes we need to be rebooted. Yeah. And when it's caused by Ptsd it, those are psychogenic, non epileptic seizures. So, and the medical community is still figuring that out as well. So that's a form of attack that looks like an epileptic seizure, but is not caused by unusual electrical patterns. So
00:28:49.460 --> 00:28:56.730 Frank R Harrison: correct. Correct. All right, so we'll be back right here on talk radio and Nyc and all of our social media. So please stay tuned.
00:28:59.410 --> 00:29:13.690 Are you passionate about the conversation around racism. Hi! I'm! Reverend Dr. Tlc. Host of the Dismantle Racism show which airs every Thursday at 11 a. M. Eastern on talk Radio Dot Nyc.
00:29:13.690 --> 00:29:26.200 join me and my amazing guest, as we discuss ways to uncover, dismantle and eradicate racism that's Thursdays at 110'clock a. M. On talk radio and Nyc.
00:29:28.840 --> 00:29:56.670 www.TalkRadio.nyc: In a post movement world. You may have many unanswered questions regarding your health. Are you looking to live a healthier lifestyle? Do you have a desire to learn more about mental health, and enhance your quality of life? Or do you just want to participate in self-understanding and awareness I'm. Frank R. Harrison, host of Frank about health, and each Thursday I will tackle these questions and work to enlighten you. Tune in every Thursday 5 P. M. On talk radio and Nyc. And I will be frank about help to advocate for all of us
00:30:01.930 --> 00:30:25.830 everybody. It's Tommy, deed and non-profit Sector Connecticut coming at you from my attic each week here on top radio and Nyc: I hosted program for land, but in focus nonprofits impact us each and every day, and it's my focus to help them amplify their message when I tell their story. Listen: Each week at 10 a. M. Eastern Standard time until 11 a. M. Is from standing time right here on talk radio and Myc.
00:30:27.040 --> 00:30:37.440 You're listening to talk radio and Yc. At Www: talk, radio and live C. Now broadcasting 24 h a day.
00:30:38.010 --> 00:30:38.980 the
00:30:58.070 --> 00:31:15.530 Frank R Harrison: hey? Everybody, and welcome back to this episode of Frank about health. As I mentioned before the break, i'd like to welcome Joey Jose Dennis as he's properly known, but he has a very interesting case of what we would model post traumatic epilepsy. And so, without further ado, Joey.
00:31:16.150 --> 00:31:18.310 Frank R Harrison: welcome and tell your story
00:31:19.300 --> 00:31:20.840 and the my
00:31:25.770 --> 00:31:32.030 my situation was. It goes back when 10 years ago you for
00:31:37.260 --> 00:31:37.880 JOEY: and
00:31:39.270 --> 00:31:40.550 JOEY: the impact cost.
00:31:41.760 --> 00:31:42.330 Okay.
00:31:42.920 --> 00:31:50.630 Frank R Harrison: Joey, can you speak a little louder? We're hearing feedback. Maybe you could talk right into the microphone.
00:31:53.080 --> 00:31:54.480 JOEY: I'm wearing my new home.
00:31:56.940 --> 00:31:58.260 JOEY: Okay.
00:31:58.920 --> 00:31:59.710 Frank R Harrison: yeah.
00:31:59.900 --> 00:32:01.010 JOEY: yes.
00:32:04.150 --> 00:32:06.060 10 years ago. I guess I
00:32:07.490 --> 00:32:09.410 JOEY: called me the flag
00:32:09.480 --> 00:32:10.790 across the street
00:32:11.490 --> 00:32:13.150 JOEY: against the poll that goes up
00:32:16.440 --> 00:32:17.150 with the
00:32:18.690 --> 00:32:19.930 of the 90.
00:32:30.090 --> 00:32:30.890 I think that
00:32:33.300 --> 00:32:36.020 so, for I was in the hospital
00:32:38.840 --> 00:32:40.210 price of schooling
00:32:41.450 --> 00:32:42.180 for another
00:32:46.920 --> 00:32:48.680 that excludes
00:32:49.750 --> 00:32:53.790 college. We at the one there are G. Of
00:32:58.250 --> 00:32:59.380 first happened
00:33:01.590 --> 00:33:05.020 in a similar room with my family. So
00:33:07.810 --> 00:33:11.630 okay. and they don't.
00:33:12.360 --> 00:33:14.090 JOEY: They took me to
00:33:15.180 --> 00:33:16.970 JOEY: Mercy hospital of the block.
00:33:17.360 --> 00:33:19.540 and still giving me.
00:33:23.130 --> 00:33:24.620 JOEY: I'm always
00:33:26.430 --> 00:33:27.020 on.
00:33:29.250 --> 00:33:33.130 It's been an interesting situation then
00:33:35.380 --> 00:33:36.620 in the year
00:33:39.500 --> 00:33:40.670 JOEY: 99,
00:33:42.360 --> 00:33:43.690 a November.
00:33:45.660 --> 00:33:46.820 JOEY: There, in the
00:33:47.410 --> 00:33:49.610 from that time until the year
00:33:53.810 --> 00:33:54.650 JOEY: is when they saw.
00:33:57.470 --> 00:34:00.290 Thank God. the research has increased
00:34:01.190 --> 00:34:01.990 JOEY: so much
00:34:02.020 --> 00:34:03.430 in the field of
00:34:04.980 --> 00:34:07.580 epilepsy that
00:34:08.330 --> 00:34:10.780 JOEY: I was able to say, you gave me the
00:34:13.670 --> 00:34:14.860 there we.
00:34:15.870 --> 00:34:17.350 As for
00:34:20.530 --> 00:34:24.429 Frank R Harrison: while the vitra sitam is the chemical name of Kepra. Correct?
00:34:24.670 --> 00:34:26.670 JOEY: That is correct. Hmm.
00:34:28.969 --> 00:34:32.670 Yeah. Every once in a while, I guess
00:34:35.810 --> 00:34:38.719 again. for here
00:34:41.130 --> 00:34:45.400 JOEY: is when I get a feature. But it's been over 10 months
00:34:46.719 --> 00:34:49.300 that has an double
00:34:50.739 --> 00:34:53.050 so far. Let it working.
00:34:54.050 --> 00:34:57.940 and you know. trying to keep my level of stress down.
00:35:02.920 --> 00:35:03.600 JOEY: Yes.
00:35:03.780 --> 00:35:06.170 10. I'm going to check with Okay.
00:35:08.770 --> 00:35:09.410 Cool
00:35:11.060 --> 00:35:11.800 my way back.
00:35:12.450 --> 00:35:31.410 Frank R Harrison: Okay? Well, you know, basically, the thing is, it's kind of interesting, Danny, that we've been talking about subways and what we're here experiencing is Joey on a bus no less, because you know. But the subway versus bus. But the thing is is that he was talking about how he was hit by a van, which
00:35:31.640 --> 00:35:41.180 Frank R Harrison: I hate to put it in the descriptive way, flew him across the street, where he banged his head on a pole that holds up the subway tracks.
00:35:41.370 --> 00:35:43.480 Frank R Harrison: you know, an upper level. Bronx.
00:35:43.700 --> 00:35:48.010 JOEY: you know, not underground subway, but an upper level subway, and
00:35:48.170 --> 00:36:07.280 Frank R Harrison: just basically knock him out unconscious, was in a coma. I know there was surgical intervention as well to help prepare bone damage on the leg an arm. But the thing is is that the the seizure itself incubated. It didn't happen. When he was 10. It happened basically 11 years later.
00:36:07.570 --> 00:36:09.970 Frank R Harrison: and then to go to 10 years of it
00:36:10.010 --> 00:36:13.750 Frank R Harrison: and then incubate again and come back 20 years later.
00:36:13.870 --> 00:36:20.520 Frank R Harrison: That's an interesting pattern that I don't know if neurologists, or even people in the field of epilepsy
00:36:20.700 --> 00:36:30.320 Frank R Harrison: are aware how those seizures in itself are either activated or reactivated after having been suppressed without medication on top of that.
00:36:30.630 --> 00:36:47.840 Jeffrey Demitrack: But what's interesting, they They look for patterns and a lot of times Brain injuries cause brain inflammation and brain inflammation contributes to the generation of an individual seizures, and
00:36:47.880 --> 00:36:53.650 Jeffrey Demitrack: and or the transformation of a normal brain into one that generates
00:36:53.660 --> 00:36:55.780 Jeffrey Demitrack: spontaneous seizures.
00:36:57.430 --> 00:36:58.620 JOEY: Interesting.
00:36:59.870 --> 00:37:00.490 Mr.
00:37:01.140 --> 00:37:07.280 Jeffrey Demitrack: And that that itself is the definition of epileptogenesis and
00:37:07.520 --> 00:37:20.220 Jeffrey Demitrack: and I it's funny that you said you were saying 11 to
00:37:20.440 --> 00:37:21.160 JOEY: I mean.
00:37:21.190 --> 00:37:24.790 JOEY: you know what we what we are finding like both in?
00:37:25.140 --> 00:37:26.070 Frank R Harrison: Oh, go ahead.
00:37:28.710 --> 00:37:32.150 you! That's it! Area of my brain
00:37:34.930 --> 00:37:39.920 for my brain. But every time I have it i'm picking out
00:37:41.790 --> 00:37:42.540 on my right.
00:37:44.330 --> 00:37:45.780 JOEY: Yeah, because you know the
00:37:46.110 --> 00:37:51.170 I feel like I'm the I've been told that I You know
00:37:56.980 --> 00:37:58.880 JOEY: what happened on the left.
00:38:01.750 --> 00:38:02.650 Okay.
00:38:02.920 --> 00:38:04.620 JOEY: No, MRI. No.
00:38:05.910 --> 00:38:07.720 Some point where
00:38:11.460 --> 00:38:12.170 electrical.
00:38:14.710 --> 00:38:22.620 Frank R Harrison: Well, yeah, because what's going on, Jeff is that he's explaining how the injury occurred on the left side of his head, his arm, and his leg.
00:38:22.770 --> 00:38:37.800 Frank R Harrison: where all the surgeries occurred, as well as the initial injury, the bang on the head against that subway pole, whatever you want to call it. But the thing is is that we all know how the brain works. Anything in the left lobe affects the right side, and the right affects the left.
00:38:38.010 --> 00:38:52.940 Frank R Harrison: Now, that being said, I think it's easy to diagnose the type of seizure disorder a person has during a seizure. If you notice a certain half of the brain or half of the body reacting more dormant or dominant.
00:38:53.000 --> 00:39:11.410 Frank R Harrison: and therefore it possibly can help those that don't know anything about seizure, control, or activity, when it can be a frightening experience to witness, but yet to be able to do what you can to advocate for the patient, whether they're being diagnosed for epilepsy or understanding that it is seizure activity due to Tbi.
00:39:11.510 --> 00:39:27.460 Jeffrey Demitrack: Yeah. And I I think it's very important. So people sometimes said that are half conscious during their seizures. If they feel a tingling on one side of the body, they gotta mention that to their neurologists, because that might be the folk I of their seizures
00:39:27.650 --> 00:39:35.130 Frank R Harrison: correct, and and I mean, according to what I've witnessed with with Joey seizures. They do happen in the full blown
00:39:35.610 --> 00:39:45.480 Frank R Harrison: schema. It's not a partial seizure, but it does start with leaning to the left a stair in a glaze, and then, all of a sudden stuttering into the full-blown attack.
00:39:45.530 --> 00:40:03.040 Frank R Harrison: So you get to see the pathway, as it's kind of exploding throughout the entire circuitry the the motherboard, if you will, you know, but the thing the thing is, is that what what I find? I, even myself, being an epileptic for now going on 40 years, or whatever it's been.
00:40:03.220 --> 00:40:18.080 Frank R Harrison: Is that what observed his version of epilepsy, or let's just say post-traumatic epilepsy it's still very interesting to observe and learn from, because on one level we're only seeing that medications are still
00:40:18.230 --> 00:40:29.470 Frank R Harrison: the go-to solution for any form of seizure disorder. We don't think that really is the ultimate solution. I'm sure I know, Danny, You've been researching into basal nerve
00:40:29.880 --> 00:40:49.020 Frank R Harrison: alterations, whether it's surgical or or some other procedures. We have all talked about cannabis, but there is there has to be some form of control for even those that are not yet born, that I guess the medical profession or the people at the Epilepsy foundation are trying to continue to research.
00:40:49.080 --> 00:41:03.550 Frank R Harrison: so that people can understand that whether you're living with epilepsy or post-traumatic epilepsy it's like there is a solution to it just like we have found some form of control for something like Covid, which 3 years ago was a complete.
00:41:03.670 --> 00:41:05.680 Frank R Harrison: You know. What are we going to do about this.
00:41:06.940 --> 00:41:07.700 JOEY: you know.
00:41:07.990 --> 00:41:26.460 Jeffrey Demitrack: And and you might ask, Why do some people have seizures or migraines? After experiencing a head trauma, and others Don't and and some neurologists would say that there might have been a instability there or a a vulnerability there.
00:41:26.460 --> 00:41:43.930 Jeffrey Demitrack: So that's why someone might it ha start having seizures, or that the head trauma was more severe in one person, and or there was a maybe bleeding, internal bleeding or a it could be a a number of different things.
00:41:44.580 --> 00:41:47.570 Frank R Harrison: you know, I guess, comparing it to myself with my
00:41:49.120 --> 00:41:55.730 Frank R Harrison: my left temporal lobe. and i'm conscious throughout them. and I've been able to control them as they're happening.
00:41:55.750 --> 00:42:13.210 Frank R Harrison: Almost like. Okay, Assume the position. You're going to go through the roller coaster routine. Now you're in the spin cycle of the washing machine. Then you're spending about 3 min getting all of your thoughts back in a row, but never finding your sense of unconsciousness. It's like, okay. Then there must have been
00:42:13.370 --> 00:42:20.410 Frank R Harrison: like you said, bleeding in that area of the brain which contained it and prevented it from becoming a grandmother Tech.
00:42:20.780 --> 00:42:21.400 Hmm.
00:42:21.790 --> 00:42:22.720 Frank R Harrison: You know
00:42:23.220 --> 00:42:40.840 Frank R Harrison: post-traumatic epilepsy, I guess in some ways has always been there, but people didn't identify it as such. They just said, okay, the person is having a seizure, yet. They just had brain surgery. Yet. They just had a concussion yet. They just got hit by a van in Joey's case, but I think for the epilepsy community
00:42:40.840 --> 00:42:51.130 Frank R Harrison: to dub it. Post-traumatic epilepsy might actually serve the epileptic community Well, in coming up with better treatments, understanding that seizure disorder is a symptom
00:42:51.270 --> 00:42:53.920 JOEY: and not actual disorder itself.
00:42:54.300 --> 00:43:00.360 Jeffrey Demitrack: Yeah. And the people having seizures and the consequences of multiple injuries impact
00:43:00.360 --> 00:43:18.020 Jeffrey Demitrack: their ability to remember things. Say we're called names. Remember facts, speak eloquently, and many other things. So all person can do is try to keep their mind sharp, and memory exercises, and many neurologists have
00:43:18.020 --> 00:43:21.990 Jeffrey Demitrack: recommended a so doku or something like that to me is
00:43:22.260 --> 00:43:39.060 Frank R Harrison: yes, trying to trying to, you know. Do some games with your brain to do recall. I wonder if Binge watching is the same thing. I'm just kidding that, all being said, we're about to take our next break. So when we return we'll spend the remaining 15 min.
00:43:39.060 --> 00:43:42.690 Frank R Harrison: pretty much wrapping a summary of post traumatic verses.
00:43:42.880 --> 00:43:51.120 Frank R Harrison: epilepsy, and thank you for all staying tuned. And we will see you in a few right here on Talk radio that Nyc. And all of our social media.
00:43:54.360 --> 00:44:18.250 everybody. It's Tommy deed and nonprofit sector connector coming at you from my attic each week here on talk radio and Nyc: I hosted program. For Lambda can focus non-profits in cocktails each and every day, and it's my focus to help them amplify their message and tell their story. Listen each week at 10 a. M. Eastern standard time until 11 a. M. Is from standing time right here on talk radio, Dot Nyc.
00:44:19.120 --> 00:44:47.050 www.TalkRadio.nyc: get up towards movement world. You may have many unanswered questions regarding your health. Are you looking to live a healthier lifestyle? Do you have a desire to learn more about mental health, and enhance your quality of life? Or do you just want to participate in self-understanding and Awareness, I'm Frank R. Harrison, host of Frank about health and each Thursday. I will tackle these questions and work to enlighten you. Tune in every 3 or 5 P. M. On talk radio and Nyc. And I will be frank about help to advocate for all of us.
00:44:49.570 --> 00:44:57.020 www.TalkRadio.nyc: Are you a conscious Co-creator? Are you on a quest to raise your vibration and your consciousness?
00:44:57.040 --> 00:45:20.890 I'm. Sam Liebo, it's your conscious consultant, and on my show the conscious consultant hour awakening humanity, we will touch upon all these topics and more. Listen. Live at our new time on Thursdays at 12 noon, Eastern time. That's the conscious consultant hour. Awakening humanity Thursday's 12 noon on Talk radio and Nyc.
00:45:25.270 --> 00:45:35.210 You're the to talk radio Nyc: at Www. Top, Radio and Yc: now broadcasting 24 h a day.
00:45:54.790 --> 00:46:11.970 Frank R Harrison: Welcome back. And as we wrap up this episode of Frank about health. We, basically I guess I basically want to just take from all of our guests on the panel some lessons learned so that we could all recommend to those suffering from post-traumatic epilepsy, or suffering from epilepsy itself
00:46:12.060 --> 00:46:30.290 Frank R Harrison: about any kind of issues related to the medications they're taking, or what anyone who is trying to explore other solutions and how to live a better quality of life. I figure, Jeff, let's start with you because you also have a book on the subject. So i'd like to know exactly what you want to promote or advocate
00:46:30.290 --> 00:46:34.180 Frank R Harrison: for those living with epilepsy of the post-traumatic or or regular variety.
00:46:35.020 --> 00:46:54.520 Jeffrey Demitrack: Well, I was gonna tell a story, and since you mentioned the subway, i'll tell story as an adult, you know, and of when I was falling down the stairs, you know, and at I it was in the city streets, and
00:46:54.550 --> 00:47:14.270 Jeffrey Demitrack: I was. It was near near a gym, and, like the gym, was was underground. So you had to go up the stairs to get out of the gym. So I started having my seizure because I was.
00:47:14.270 --> 00:47:31.820 Jeffrey Demitrack: or overheated by working out, and my first instinct during an or is to try to get away from people or it it used to be because, you know, I've lived in the in city on the city streets, but and usually people mishandle
00:47:31.820 --> 00:47:50.950 Jeffrey Demitrack: my seizures when and so you know, I, running out of the gym, was my first instinct with which it shouldn't be it should be just to lay down. Have my seizure. But you know sometimes you don't always do the right thing, you know. So in your or so. I I ran out of the seizure and I started. Have it.
00:47:50.950 --> 00:48:10.080 Jeffrey Demitrack: I I ran out of the gym and started having a seizure on the stairs, and they were but pay I I I could have broken my neck, but it was a a really bad, you know. It's a like one of those big stair wells that you'll see it like in in Times Square or Penn Station, you know. So
00:48:10.290 --> 00:48:16.270 Jeffrey Demitrack: yeah, yeah, so it it just reminded me of that when we were talking about the subway station.
00:48:16.640 --> 00:48:27.800 Frank R Harrison: But I mean, based on that. Are you saying that even though you have been living with epilepsy as a child, that you predominantly suffer from seizure of the post-traumatic variety.
00:48:28.270 --> 00:48:46.280 Jeffrey Demitrack: Well I I think that I've because I have refractory epilepsy. You know I I. I anticipate a certain amount of seizures per month. But once a I have a head trauma during one of those seizures you know
00:48:46.280 --> 00:49:03.690 Jeffrey Demitrack: that month. Then I can I? I I guess i'll probably have more, because, you know, I would say that, you know, like I was talking about the brand inflammation before it. It might be a consequence as well as the cause of seizures.
00:49:03.690 --> 00:49:20.330 Jeffrey Demitrack: So it it's a you know it it many times. It's the cause of more seizures, and it could be. It can lead to a bad month for me if I have a a bad bad fall from it, and I hit my head.
00:49:20.360 --> 00:49:38.050 Jeffrey Demitrack: and so a. And usually my seizures coming clusters so like that's not the case for everyone, but so i'll have a like a pretty bad one, but then i'll have, say a a a complex partial after that one. And
00:49:38.170 --> 00:49:48.170 Jeffrey Demitrack: but if I if I started off with a grand mall, and I hit my head. So I I can expect probably maybe a another few, you know. So
00:49:48.190 --> 00:49:50.470 Jeffrey Demitrack: yeah, that's how it usually goes.
00:49:50.820 --> 00:49:57.190 Frank R Harrison: So you're basically your basic takeaway from your own experience is that everyone should be
00:49:57.380 --> 00:50:16.770 Frank R Harrison: owning the patterns that they have learned to become accustomed to when they know what seizure is coming on, where they need to be what they have to do to protect not only the people that are in the area, but also themselves from falling down a flight of stairs. God forbid! Or even doing what they can to continue the medication and any other special
00:50:16.810 --> 00:50:22.560 Frank R Harrison: assistance, especially if you are suffering from other symptoms related to the attack right?
00:50:22.720 --> 00:50:38.110 Jeffrey Demitrack: Well, a lot of times, you know. I'll have them right before I go to bed. I'll have them in that that period where you're falling asleep. You know that that's when i'll have a seizure. So what i'll do is i'll. I'll get out of my bed
00:50:38.110 --> 00:50:50.520 Jeffrey Demitrack: my bed when I feel that Aura coming on, and i'll i'll move to the floor, so I I keep a pill on the floor of my room, and I I keep my my room seizure friendly
00:50:50.520 --> 00:51:03.800 Jeffrey Demitrack: the safety, you know. I I try to keep it safe. So no, no sharp edges around, you know. So because I I anticipate that i'm gonna have some seizures at night and in my bedroom. So
00:51:04.090 --> 00:51:04.850 Jeffrey Demitrack: hmm!
00:51:05.230 --> 00:51:13.370 Frank R Harrison: What about you, Danny? What would you like to offer the public about how to be mindful, especially with whatever type of epilepsy they're suffering from.
00:51:14.180 --> 00:51:22.690 Danielle: Oh, well, I I feel like this. All goes to show just how complex epilepsy really is. There's a lot more research to be done.
00:51:22.890 --> 00:51:28.400 Danielle: I usually have my seizures at night, too, if I have them, although that's changed over the past year. But
00:51:29.760 --> 00:51:32.580 Danielle: you know there's I think we all just have to keep
00:51:32.740 --> 00:51:41.460 Danielle: looking for for new ways, or what whatever ways are going to work best for us. So for some people it's the trying different medications for others.
00:51:41.750 --> 00:51:47.210 Danielle: Brain surgery or the Vegas nerve stimulator is an option. I know we were talking about
00:51:47.660 --> 00:51:59.250 Danielle: earlier, and actually for anyone. I I get really into a lot of the holistic stuff, right? I tried yoga and meditation for a while. I still do that that does help tremendously for me.
00:51:59.320 --> 00:52:03.900 Danielle: but they they are starting to find research about the Vegas nerve.
00:52:04.110 --> 00:52:21.170 Danielle: like system being related to, or corresponding to, at least some of the like the Chakras, that if if you're familiar with that, anyone who wants to research that it's a very interesting rabbit Hold the go down. That's why a lot of this holistic stuff actually does
00:52:21.190 --> 00:52:23.020 Danielle: at least work or help.
00:52:23.370 --> 00:52:31.760 Danielle: So I I would say, but I guess I can't even speak today. We just have to keep looking for what works for us and
00:52:32.010 --> 00:52:38.090 Danielle: the people who are on the research end of things. And you know, neuroscientists, all that doctors.
00:52:38.120 --> 00:52:40.100 Danielle: I guess learning, and
00:52:40.480 --> 00:52:43.520 Danielle: that's what we all have to keep on doing. Got it to keep going
00:52:43.810 --> 00:53:04.820 Jeffrey Demitrack: right? No, and you're right, Danielle. I mean everybody. You know it. Their case is unique, and that's gonna we're gonna touch on that. It on the thirtieth. And you know, really, it's so hard to find patterns when it comes to an epilepsy case. You know everybody tries to do it, and they wish they can, you know so.
00:53:04.820 --> 00:53:23.560 Frank R Harrison: And and you, Joey, what would you say to the listeners and viewers out there in terms of you being an individual who sniffers from post-traumatic epilepsy would be the vice that you can give to observe their auras, or understand or not forget to take their medication or other kinds of techniques, to keep themselves
00:53:23.600 --> 00:53:27.330 Frank R Harrison: as as as alive as possible, or as aware as possible.
00:53:28.790 --> 00:53:30.620 Well, I would try
00:53:31.620 --> 00:53:32.180 you
00:53:34.010 --> 00:53:36.980 really. especially I work in a school.
00:53:38.420 --> 00:53:39.020 so
00:53:40.490 --> 00:53:41.280 i'm pretty myself.
00:53:42.540 --> 00:53:44.430 JOEY: We've been slowly, and we
00:53:51.970 --> 00:53:52.550 this
00:53:54.800 --> 00:53:58.300 like that. So my seizures, I know, and
00:53:58.530 --> 00:54:00.080 JOEY: I don't have a trigger
00:54:00.470 --> 00:54:02.350 for it. I don't feel
00:54:02.530 --> 00:54:03.330 JOEY: to
00:54:03.740 --> 00:54:07.070 that some people have like
00:54:08.470 --> 00:54:10.700 feeling that they get if this happened.
00:54:15.120 --> 00:54:15.730 Always try to.
00:54:23.210 --> 00:54:25.560 And I do, Mr. When I
00:54:28.870 --> 00:54:29.830 Frank R Harrison: Okay.
00:54:29.980 --> 00:54:45.050 Frank R Harrison: And so I would say for everybody out there to not only be mindful of your medications. Both the generic version we mentioned an example of the Vitrus of Tam, which is Kepra Lemotra. Jean is Lynn Mickville Phenotyian is my lantern I think.
00:54:45.360 --> 00:55:03.770 Frank R Harrison: and Depa keen is Deb a coat. The point of the matter is, whatever it is, make sure it is the best medication in terms of no sacrifice of the chemical components around it. There's always debate about that, especially if you're taking taking the generic type. And of course, that depends on the severity of frequency of your seizure. Activity.
00:55:03.770 --> 00:55:21.180 Frank R Harrison: I would say also keep in mind of mental health related issues, depression, anxiety. Probably Ptsd symptoms. As you said earlier, Jeffrey sometimes when you almost reliving the trauma that you had it's like allowing your brain to stir the pot and creating seizure activity.
00:55:21.180 --> 00:55:33.340 Frank R Harrison: So it's just a matter of also showing up your reserve of doctors whether this neurologists, epileptologists, psychiatrists, if necessary, Sometimes, for example, the bipolar patients.
00:55:33.360 --> 00:55:48.010 Frank R Harrison: they were subscribed lameytel just like the epilepsy patients, so there could be a correlation for those particular patients. But at the same time it's just an issue of trying to understand that neurological health and mental health
00:55:48.040 --> 00:55:59.670 Frank R Harrison: are sometimes in, you know, work together, and in order to emphasize your quality of life, you have to be mindful of all the aspects of your life, so that you don't trigger seizures. But at the same time
00:55:59.710 --> 00:56:03.880 Frank R Harrison: you also have a way of stabilizing yourself throughout your community.
00:56:04.050 --> 00:56:18.260 Frank R Harrison: Speaking about community. I like to promote tomorrow's state of shows, and we start with always Friday. Actually, no. We start with philanthropy and focus with Tommy D. Then we have always Friday with Stephen Fry and our new show in tangify with with
00:56:18.800 --> 00:56:38.500 Frank R Harrison: with Matthew as Bell, and that's a very interesting guy that's joined our network. He has told me in advance. There are a lot of health I. P. Issues that we will be discussing later on, Frank about health over the coming months. At the same time I want to say that next week, as Jeffrey indicated, we're going to have a wrap up.
00:56:38.500 --> 00:56:57.890 Frank R Harrison: All the epilepsy shows that we have worked on together since December, and we're going to give you all a nice opportunity to put Cs. All live in the summer months, and we'll talk more about that next week. Thank you, Joey, for being here and talking about your case. If you have any questions about Joey's case, or Danielle's myself or Jeff.
00:56:57.890 --> 00:57:15.750 Frank R Harrison: You could contact me@frankorharrisononeatgmail.com, and I could forward you their information if you would like to reach to them directly. But we are here to be frank about epilepsy right here on Frank about health. Thanks for staying tuned, and we will see you all next week.
00:57:16.010 --> 00:57:16.840 Frank R Harrison: Bye bye.
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